Change is not always a bad thing.

We have come to find that there are more and more Ped. Specialists at the Childrens Memorial Hospital in South Bend which is only about 40 min from us.

We decided to try the GI specialist and he has come up with a good plan for Broc so we are happy with him.Today I met with the Neurologist and she is wonderful.Her bedside manner is really soft and calm. I love the fact that you get to speak to the actual Dr and not a resident via the Dr. She also listened the whole time I was talking to her and making as many notes as she could.She said that she is very eager to help us figure out whether Broc is having seizures of any kind or if its just a weird thing that he does.
She also feels that he may have Mitochondrial Disease and is not happy with the reason we were given from the previous Neuro which was that Broc lost some O2 or blood to the brain and that is the reason for the lack of white matter volume loss.
She is very determined to find a reason for the loss.She said that because he met all his milestones growing up and he is as smart as a whip,somethings do not add up.

She recommended that we see Dr Walsh and I told her that we will be seeing him in July. She said that if Dr Walsh feels that Broc does not qualify for some reason for testing then she will go ahead with the testing as we have nothing to loose.

So for now we are going to wait until Broc is off all pain meds completely before we schedule him for the Video EEG. We will still need a place for Mark to go but it will only be for 2 days and I will be so close to home. I love the fact that I will only be 40 min away from home instead of 3.5hrs away from home.

If we are allowed to have visitors it will be a lot closer for people to come and visit us too.

On a more stressful note we have 5 days left till we leave for Brocs surgery.The boys have been talking about the surgery this week and have been telling each other how they are going to miss each other. They love each other so much.