Recovering slowly........

Broc is recovering slowly.He is still running a low grade fever and battling an upper resp. infection.His brother Mark was diagnosed with strep at the beginning of the week so he is on antibiotics.He is on the mend.

The ped is hesitant to give Broc more antibiotics as he just finished one Sat from his surgery.We got the results back from his ph study and the poor guy refluxed 141 times in 24hours.No wonder he is so uncomfortable when he is not on medication, but because his reflux episodes don't last longer than 5 minutes his reflux scored a normal score on the test.

His GI dr is not going to treat him according to the test cause it did prove that he clearly has an issue with reflux so he is continuing with his reflux meds.We are hoping that the surgery will help with his reflux too.We are hoping that it will improve over time.

His ped has drawn some hormone labs on him to rule out his hormones being a factor for his rare leg bones.We will be very happy if they come back negative then we know that we are dealing solely with a genetic issue.

We are still waiting on the geneticist app as she only comes to La Porte twice a month.

Broc is still having leg and knee discomfort,but we will just medicate him when he needs it.There is not much that we can do about that now either.

Other than all his aches and pains and rare issues he is doing really well.He still goes all day till he runs out of energy.He pushes himself to the limit every day.

Although his heart is repaired for now we still have to be careful about him getting sick, especially in the Winter months.

We are hoping for a great month in April so that we can auxillary pioneer.We do have some appointments for Broc but hoping they will not hold us back.

Thank you again to everyone for all the support and love you show us.

Broc is home from his surgery - Day 4

Broc is doing well at home.Besides the fevers and really being crabby he is doing pretty good. he does not tell you that he is in pain but starts to drool and cry and then you know it is time again for the next dose.He is not eating all that well but drinking well.

We are going to be keeping him home till next Sunday and then we will see how he is doing after that.

We did see the Endo Dr and he said that he could not help us and that Broc's leg issues could be genetic, so his ped is setting us up to see one close to home.

T & A surgery

We arrived at Riley yesterday and the probe was fitted for the ph study.He did not like it going in but was fine once it was in.It bother him a few times during the day but otherwise he was fine.
We took him to the Childrens Museum to take his mind off the tube.He loved looking at all the animals,sitting in the race car and playing games with daddy.

We arrived back at riely this morning to have his tonsils and adenoids surgery.Dr Matt said that they were both huge and he also went ahead and put in ear tubes for him too.He is on the heart floor and watching Monster Jam with his dad.He is still in a fair amount of pain but the nurses are doign a great job of controlling that.

If he eats tonight and has a good night then we are able to leave tom morning.
Thanks to everyone for their support,prayers and kind words.