Today was another rough today. His eos level had gone up to 11% today and his temp climed all day. Not extremely high but enough to make him feel lousy and sleep most of the day. Broc was very nauseous and was having dry heaves throughout the day on and off. The order for his feeds finally came through around noon. Once the formula was made and be out up to the room his feeds started at 1:40pm. We started his feeds very slowly and have slowly increased every 2 hours. Once he reached 40ml per hour he started to dry heave again and get very nauseous so we have him some zofran and switched off his feeds for an hour or so to rest his belly a bit.
Once he had the zofran in him for a while he got his meds again and we re started his feeds. He seemed to tolerate them well again. Soon after that he seemed to settle down and go to sleep for the night until about an hour later he woke up crying in pain. We called the nurse and she took a look at his leg. We rubbed it ,moved it did all we could to make him happy. Nothing worked. Due it being his right leg (the one they just repaired) we were very concerned. She paged the Vascular team and Brittany came out to look at him. She assessed his leg and looked over all his history again. She also looked at some of the labs that came back from Mayo Clinic. We found out today that his Factor 8 assay came back elevated so he is at risks now for deep vein thrombosis. Brittany told us to elevate his leg and just keep any eye on him. No sooner had she left the room when he started crying in pain again and grabbing his leg. Once again the nurse paged Brittany and she came over. She could see that he was in a lot of pain so she ordered oxy for him.
He is settled now with the oxy and resting well. We are hoping that he will get an ultra sound tom to look and see if he has any blood clots. We know that the revision is doing well and all his vessels are open from the angiogram. Broc is known to do weird things so there is a worry that something could be wrong.
Vascular will be back in at 2am to look at him again. They will be paged again if he is to wake up out of his sleep in pain. Praying I can get some rest tonight.
The feeding company will be coming to the hospital tom to teach me how to feed him with the feeding pump. I will also be learning how to give all his meds through his tube as well. I did do some of them by myself today.
Wow my brain will be fried by the end of tom again. We were hoping to go home tom but if the feeding and pain is not sorted then we will go home Thursaday.
Thank you for all the kind messages and prayers. We love you all and don't know what we would do without everyone's love and support. Thank you too to all the friends that are helping taking care of Lil Mark. We really appreciate all the help.
Sounds like a day!! So sorry..sending our love to you and Broc
ReplyDeleteMy heart goes out to you both. We have been thinking about you guys all the time. You both have our love.
ReplyDeleteSounds like a long hard day. Tube feedings arent too hard to learn.hope he can tolerate them so you get to go home
ReplyDeleteI'm sorry today was a rough day :(
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