Day 13 and we are HOME

Yesterday was a long day for both of us. The team came in and said things are looking good we can go home. Then all bits and pieces had to be put in place. Thankfully there is a wonderful lady called Linda our discharge nurse who took care of everything from ordering all his new feeding supplies to setting up his nursing at home.
Around 1pm the feeding people came to deliver Brocs pump,back pack and a few supplies to get us started. Fortunately there wasn't much teaching involved cause the nurses had already let me start using the pump in the hospital.
Once teaching was done it was time to load the car. Discharge papers were so easy as once they realize this is not your just rodeo they skip all the non important things which makes things to so much faster.

We finally got on the road around 2 stopped for a short break then arrived home around 5:30. It was so nice to sleep in our own beds last night. We had to change Brocs bed around to accommodate  after his feeding pump. He got up once to pee. The only way I knew was cause we left his hope beads on his pole and I heard them jingling so great idea I was able to help him. Around 3:30 his alarm went off poor guy was sleeping so soundly he was laying on his tube and it got kinked. That was geeat timing cause he was running low so I had to top up his bag anyway. I just made my first batch of formula and all went well.

Some results are in from the testing but I have to run them by our Dr before I can let you all know.

Thank you again for all the love and support. Thank you to all his great nurses. Allyssa, Rachel,Matt,Austin,Amy and many others. Thank you to Dr O for taking such an interest in our lives as parents, hope you get to visit South Africa soon. Thank you too to the Peds Gen team that took great care of Broc and to his wonderful surgeon Dr Eliason. We love you all.

Story time with Daddy

More stories with Daddy

Marie giving Broc a bath. She took really good care of Broc while he was there.

Breathing treatments are a breeze. He slept through most of them.

This is the back pack he wears with is feeding pump and bag in it so that when we are out he is not hooked to a pole. 

Sleeping in his own bed after 12 days.