We had a great day today. Sadly we had to say goodbye to Daddy. Broc and I were so happy he surprised us. It was just the boost that we both needed. He was also able to talk to the team and here there plan for Broc.
With all the gut issues Broc had yesterday he lost a pound. Today he had a similar episode where it's totally uncontrollable. Last nights episode was so bad it took Mark ,myself and the nurse to clean him all up.
I was on my own today for his episode so I had to call the nurse to help me. He had another one later this evening. We are trying to give him enough fluids as well as his tube feedings so he doesn't dehydrate. If things get any worse we will put pedialite in his formula.
There is not much more that the hospital can do for us. We can manage his fevers and gut issues at home. He is no longer neutropenic so he is safe regarding that issue. There will be lots of drs apps once we get home. Once we get home if you would like to visit please call before hand. Please do not come if you are ill or have been around people that are ill. Brocs immune system has really taken a knock with this virus on top of his already compromised immune system.
I am hoping to have my training on his pump tom and then we can arrange the discharge for the early afternoon. Everyone knows we have a long drive so they will try and get everything organized as soon as they can. They have said that if it ends up bring much later then we will leave Tuesday morning. We are so ready to come home and sleep in our own beds.
It seems that if Broc were to get extremely ill again we would most likely bring him here as they really care about how complex he is.
I will update on Instagram if we are leaving then will write a blog that evening. Thank you for all your love and support.
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