From now on I will be posting the day that we are still in the hospital. Broc did really well after his tube placement yesterday. He still had a sore throat so he was given Tylenol in the evening. He did spike a fever again last night. His belly started getting very distended last night around 9pm so they paged the attending and he came and looked at Broc. He said he has the start of an ileus so he kept his feeds at 30ml/hour.
He seemed to settle after we adjusted his feeds back again. We slept pretty well last night. This morning his bowel sounds were slightly diminished and then got better after a couple hours. After that Brocs belly went crazy. I literally stood at his bed and changed diaper after diaper. It was crazy. I couldnt change them fast enough.
The team rounded and were wonderful. They said that they had been researching all night about possible viruses that a person with CVID could get. Especially ones that can make them very ill. They spoke about Cytomegalovirus and EBV. Today they are testing him for that.
Broc has had a slight fever today. He is only up to 35ml/ hour. We are watching his belly to see how he handles the increase. His goal is 55ml/hour. He is still on IV fluids as well.
He sat in the chair with daddy today while he reds him stories. YES Daddy drove down to visit us. Broc and I were so surprised and happy. It is a really nice break for me. I have been with Broc 24/7 and taking care of him is a lot of work now with his feeding pump, measuring and weighing everything. We have had a wonderful team of nurses and aides taking care of Broc. It has been really helpful to have same ones then I don't have to go over his history and all his normal values and how he needs to be treated.
Broc is still having some nausea and requires some zofran on and off. We are hoping for a good night. More labs and test will be done in the morning too.Thank you in advance to all our friends who will be helping with putting Lil Mark on the bus and for getting him off the bus in the afternoon.
So for now we need his belly to settle,fevers to stay away, his strength to come back and tolerating all his feeds.
I'm glad you guys got some rest and you got a bit of a break when Mark came :) As much as we love the kiddos, the 24/7 routine of a hospital stay, especially when our babes are very sick, is draining and even a short break helps so much.
ReplyDeleteSo glad that you got some Daddy backup. Been thinking about you and praying for Broc to get better. {{{HUG}}}
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