Well Broc had labs done again today. We were very happy with Fridays number but not with today's. Today's number is concerning cause it means the minute we taper the steroids his numbers start going back up. Dr says to finish the course and then we will see. Broc cannot get his flu shot nor be around anyone that has had the flu mist. School is definitely out the question for a while still. Our family is dealing with a lot right now but we just keep swimming even though the current gets stronger at times, and take one day at a time.
I know to many people it looks and sounds like Broc is healthy and you are all wondering why this poor kid cannot go to school and be around other people. Inside his body is very ill and fragile. It beaks our heart to tell him he cannot ride his bike or go play at a friends house.
I know every post I have written for a while seems like I am repeating myself but it seems that is what is happening. Broc is also having choking episodes at random times which leads us to believe that his reflux is now out of control and he needs the Nissen surgery soon. But before we can think about that we need to have his heart evaluation to make sure he is cleared for anesthesia. After that we need to have his legs looked at. Something is not right with his right leg. He is having continuous pain and discomfort in his leg and foot.
But before we do all of that we have to make sure his body is done rejecting the patch in his brain. No body will touch him while he is immuno compromised.
Our family will be going through a lot in the next couple of months. We know that we will get through anything by relying on Jehovah for strength and comfort. We appreciate all your prayers and support.
It is as though he is in a holding pattern right now, just circling around the same spot, not moving away or closer, just......holding. Its such a tough cycle to be stuck in, though, especially with young ones who want to move and play and do their favorite things.
ReplyDeleteYes for a 7 year old its very frustrating.
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