Brocs MOTT update and good news.

Yesterday Broc and I took a trip to Michigan to see Dr Eliason and his nurse Char. Broc loves them and so do we. They have been so kind and patient with us all. First we headed to ultra sound to see how his graft is doing.

As usual it really doesn't bother Broc unless he has something to watch on the ipad. It is very sensitive for him to have the ultra sound so we try and distract him as much as possible. The calmer he is the better pictures they can get. Great News!!! He has excellent flow through his graft and the velocities are great too.

Next step off to have ABI's. They measure the pressures in his legs and arms.

This took a little longer than usual as the tech only had 1 cuff that was child sized. Normally they would do the pressures at the same time. He did wonderful at laying so still.

More Great News!!! He has great pressures in his legs.

Then off to see Dr Eliason and Char. He was very surprised to find out all that has been going on with Broc. We talked again about the patch in his leg that he reacted to and we found out that it is a human umbilical vein graft that is wrapped in a nylon woven mesh. So the mesh that Broc reacted to was the nylon mesh. So its synthetic and not human as we thought. That brings us to the reaction that Broc is dealing with at the moment with the patch sewn into his dura (the membrane over his brain). Dr Eliason thinks that is would be wise for us to see if Broc has some sort of allergy to nylon or synthetic materials in case he would have to have something again in the future.

He never ordered a scanogram with this visit but with Brocs PTs concerns about his leg lengths and the fact that he is favoring his right leg still and looking a little lop sided he went ahead and ordered one anyway. We dont have the results of that yet as it was an add on. If Brocs leg length is starting to go the wrong way then we will be referred to ortho so that they can see why his bones are not growing like they should. The reason they did the surgery when they did was to give Broc the maximum benefit of having his leg length coming back. The last time we had his scanogram taken his legs were only 8mm different.

All in all it was a great visit with great news. If his leg bones or spine or hips are causing issues then we will have to visit ortho for that. We also only have to come back next year and not in 6 months time.

More good news is that Broc had labs today at the hospital and his eos level was down from 16 to 4. Normal is between 0-6 so 4 is a wonderful number. We have to keep checking his labs every 3 days to make sure that number stays in a good range.

Broc will be having a cardio check up next Monday to see how his heart is handling all these fevers and inflammation.

Thank you every one for your love and support.