Our Good News was short lived...

I really hate waiting for a Dr to call me with the results. Waiting seriously drives a mom crazy!! So I emailed the nurse last night to see if maybe they had the scanogram results ready. This morning I opened my email and there it was.

The results of Brocs scanogram were certainly NOT what we were expecting. When Brocs PT teacher expressed her concerns about his leg length discrepancy a month ago, that night Mark and I measured Brocs legs too and we also came up with a similar number to her. All 3 of us were thinking surely not. We knew Broc was having a check up in a months time and never thought of it again. They cannot be that bad? Could they?

Unfortunately they are. Brocs LLD is now 1.2cm. Six months ago his leg length discrepancy was only 8mm. Essentially Brocs right leg stopped growing between now and 6 months ago. This huge difference is very concerning to Brocs vascular surgeons. They want him to have a CT Angiogram as soon as possible. First things first we have to wait for Brocs body to stop rejecting the patch in his brain. We are on our second round of steroids for it. We draw labs every 3 days for this. Once the steroids are completed we will continue to draw labs. If his eos count stays within normal range for a week straight then we are good to go for the angiogram. The angiogram will tell the Drs if there is any other vascular issues going on or if there is diminished blood flow to that extremity.

Mark nor I have the heart to tell Broc that he has to undergo yet another procedure. When it gets closer to the time we will let him know. For now he is dealing with so much with the rejection of the patch and now his incision has come open too we don't want to stress him anymore than he has to be. We have to put ABX cream on his incision now and keep it free from infection while it heals from the inside out. The steroids that he is on is also slowing the healing process a lot.

Little Marks anxiety is also on a very bad high at the moment. He just wants his brother fixed. He told me tonight that he wants to take Buddy away so that he wont have to have anymore surgeries. He said he knows that Jehovah will fix everything in the Paradise. He prays everyday at breakfast for him to please bring the Paradise so Buddy wont have to be sick anymore. I can only imagine what is going through his little mind. As parents Mark and I are having a rough time dealing with all this. We are relying on our God everyday to give us the strength and faith we need.

We want to thank you all for your love and support.