Broc and I saw Dr Harris yesterday to come up with a plan to treat his reactive responses.We are thinking that the high blood pressures Broc was having was not necessarily cardiac related but more of a reactive response. Just to cover him in the future if it did happen again his heart meds were increased. High blood pressure for Broc can be very serious for his heart. Broc is still having fevers. As I said in a previous post we will check his CBC on Saturday to see where his eos count is. If its trending up again we will start steroids again. This will be checked every 3 days until his eos count is down to normal range. We cannot do surgery on his with a reactive response happening in his body.
Broc proved to be a very difficult stick this time around. He normally only has a few veins to offer anyway but once those are blown then we have to struggle to find access for IV lines. Thank goodness he had the MRI under anesthesia so they were able to place another IV while he was under as the old one had started to fail.
We have decided that a PICC line will be the best option for Broc. It will make access for labs and medications much easier. Dr Harris is talking to Memorial Hospital to see if they would be comfortable with placing the line for Broc.
Broc will also be on a longer course of steroids after his vascular surgery so that way we will know that his fevers post op are infection related and not reactive response related. He will also have daily lab draws to monitor his eos levels.
Next week we will start looking at Brocs Hgb level to make sure it is 12 and above. If not then he will be getting EPO shots to increase his Hgb level. We do this so that when Broc goes in for his vascular surgery the surgeon is comfortable even if there were to be a little blood loss. The heamo-dilution and cell savage machines will be used during surgery to help prevent extensive blood loss.
For now we have many app to follow up with as well as lots of things to get in place before his next surgery. We have to be very careful around people or even being in a public place as Brocs immune system is already compromised and with him being on steroids its even weaker. An illness right now for Broc could be very dangerous. If you would like to visit please call before hand and also please do not visit if you have been around anyone that you know is ill.
We truly appreciate all the help with meals,looking after Lil Mark, putting him on the bus in the mornings if I am not here or watching him at home once the bus drops him.Thank you for all your love, prayers and support.
Broc is on an all liquid diet for the next 3 weeks so if you see him please do not offer him any food or candy as it will just make it that much more difficult for him.
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