Wednesday, December 3, 2014

First Home Infusion and hospital update

Monday Broc had his treatment at home for the first time. He was a little bit of a difficult stick but they finally got it. We know next time to use his hands. His veins in his arms are just too wobbly and move around a lot or they blow.

A port has been discussed a few times with various drs regarding his IV access but with his immune system and his heart is just too scary. It may be something we may have to consider down the road though.


Broc relaxing on the couch watching the ipad. The comfort of home is so warming.


Nurse Debie making sure all Brocs vitals are stable. She was so loving and kind even when Broc was screaming so loud he almost made us deaf. At least we know that he can make his needs known. Honestly I think its better for Broc to scream and express himself when he is in pain. He goes through so much so when he says enough is enough then you know he is at his limit.


Mark came home from school and joined him on the couch.

I loved the fact that I was able to cook dinner as well as a few meals for daddy while I will be at the hospital with Broc. 

Please keep our Buddy in your prayers as he has surgery on Thursday. We are hoping this will be a relatively easy surgery for him. Unfortunately with Brocs heart the way it is any anesthesia can be so dangerous for his heart even if the surgery is easy. We are also concerned about the complications his body will have afterwards. Brocs body does weird things after surgery. His immune system is so unstable that its doesn't know how to cope after any stress its been through. We are doing some pre-op meds to see if it will help him.

Broc  loved getting all the cards you all sent him through the hospital so here is the link again if you would like to send him a card.

http://iuhealth.org/riley/for-patients-and-families/patient-postcards/

Even if it doesn't arrive before we leave the hospital they will mail it to the house.

Please feel free to call or text while I am at the hospital. We love all the support and prayers from all our friends and family.

I will post updates on the day of surgery. It should last about 2 1/2 hours.

Thank you for all your love and support.



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