Saturday, December 27, 2014

Two weeks and counting ...

Yesterday marked 2 weeks till Brocs next surgery. His recovery has been wild to say the least. Shortly after we got home from the hospital Lil Mark came down with what we thought was the flu. No it turned out to be Mono!! For those of you that don't know what Mono is its from the Epstein Barr Virus Family. Broc had it in 2009 for almost the entire year. That is one reason he was so ill that year.

Anyway we tried to keep them apart as much as we could. I bought an extra thermometer and wrote the boys names on them. We had everything separated for them. They didn't like the fact that they couldn't play together or sit close to each other. Life was really scary for Mark with temps over 103 for a week straight. He gave us quite a scare a few times with how he was acting. Dr M was great at re-assuring us that he will be fine it will just take time.

During this time Broc was having labs ever 3 days at the hospital. Last Monday his eos levels were trending higher but we (Dr H, Dr M and Me) decided that we would see where his numbers would go as we want to keep him off steroids as long as we can before he has to go back on them for his next surgery. Broc continued to have fevers still. He has not had a fever free day since his surgery on Dec 4. Well his labs were not good yesterday. His eos count is almost double what it was on Monday which means he need steroids again. We are only doing 2 days of steroids to see if that will bring it back down again. We are also checking his Hgb levels. Dr Eliason would like them to be at 12 or above before surgery in case we were to run into any problems. The problem is we cannot give Broc EPO shots at the same time as his steroids. Steroids do not come without side effects either.

Right now its all a balancing act and we are trying to find a happy medium for Brocs body.Thank goodness Lil Mark is back to his old self again. He is still having times were he gets tired but that is part of EDS too so its a little hard to know where the tiredness comes from. He has caught up on all his homework that he missed. He missed the whole last week of school. Thank you too to all his classmates who made such loving get well cards for him. It was very sweet of them. Thank you too to all Brocs classmates who made get well and miss you cards for him too. He loves reading all the cards from you all.



Broc also had another IV treatment on Monday. Things went so smoothly. The PICC line makes things so much easier. All we have to do is hook him up. No pokes, no crying,no holding our Buddy down. We love it!!!
He did get a little nausea from his treatment this time so we have a little meds and he went to sleep. Mark does such a great job at helping his brother. It was his first time being at home while Buddy was having his treatment. He helped the nurse gather all the supplies and made sure Broc always had a drink in his cup. Mark also helps me flush Brocs lines twice a day. He knows what supplies to get and gets them all ready for me. We are trying to have him as involved as we can so that he feels important too. Although this is all about Broc we want Mark to feel he is included as much as possible too.

We thank you for all your continued love,prayers and support. The next week and a half will be very busy as we get ready for our next journey. If you would like to come and visit us before Brocs surgery please call before hand and make sure you are well. If he gets ill before surgery it could cause his surgery to be cancelled.

We will be looking for some helpers during the week of Jan 12-23 to put Mark on the bus in the mornings and possibly after school, so please let us know if you are available to help.

Friday, December 19, 2014

Recovery and PICC Line

Broc has been doing well during his recovery. He is still having fevers due to his immune response to surgery. Thankfully his blood pressure has gone back to normal and no more vagal responses where he turned blue. That was seriously scary to see. He is having times when his body gets wiped out and he has to lay down.


 
Thank you Aqua for making Broc this very special blanket. He loves it and it goes everywhere with him.
His incisions are taking a little longer to heal due to him being on steroids still. Unfortunately his eosinophil count is still higher than we want it.

 
We had a visit from Uncle Scott. The boys loved him reading stories.
 
Broc had his PICC line put in on Wednesday. Probably one of the scariest days for this mommy. We should have had it done at Riley Hospital. There was a huge lack in communication and they never looked at Brocs extensive history before hand. Needless to say Sis Garner and I prayed the entire time Broc was in the OR.

The Child life Specialist came before hand and explained what was going to happen. Broc and Mark were given stuffed animals and Brocs was given a PICC line first.

 
Broc inspecting what the PICC line will look like and wondering if he should really go through with it.
 
While Broc was back in the OR we ran downstairs to grab something to eat as non of us had eaten yet. he was supposed to have his PICC done at 11am but cause he needed to have it done in the OR he got bumped to 1:45pm.
 
Broc was very upset while they were taking him back because of all the uncertainty and not eating or even drinking so I was able to go back and put him to sleep. I had to put on a cap and mask and climb on the bed with him. I was able to hold him in my arms until he was fast asleep. I wish I could have stayed with him the entire time but I did really need to eat before I passed out myself.
 
Finally we got the word that he was back upstairs on the peds floor. Once he was awake he asked for a milkshake and they nurses very kindly made him a milkshake. Once all his vitals were stable and he had peed we were discharged. We had to wait for the PICC team to come in so they could teach me how to flush his line, how to care for it and what to do in an emergency if something happened to it.
 

 
Once I got all my training and books we were able to leave. It was a very long day esp for Lil Mark as he is really ill but unfortunately had to come with us. He wanted to be with his mommy. Sis Garner was a great surrogate grandma for the day. It was nice to have moral support too.
 
 

   Mark and I are still learning the ropes with Brocs PICC line. Bathing is really interesting cause his line cannot get wet at all so we have to wrap his arm  in plastic wrap then cover it and tape it up. His lines also have to be flushed twice a day so we will be doing that too.

Thank you for all the love, prayers and support. We are hoping to get Mark better and keep Broc healthy till Brocs next surgery on Jan 8.

Thursday, December 11, 2014

Plan for his next surgery

Broc and I saw Dr Harris yesterday to come up with a plan to treat his reactive responses.We are thinking that the high blood pressures Broc was having was not necessarily cardiac related but more of a reactive response. Just to cover him in the future if it did happen again his heart meds were increased. High blood pressure for Broc can be very serious for his heart. Broc is still having fevers. As I said in a previous post we will check his CBC on Saturday to see where his eos count is. If its trending up again we will start steroids again. This will be checked every 3 days until his eos count is down to normal range. We cannot do surgery on his with a reactive response happening in his body.

Broc proved to be a very difficult stick this time around. He normally only has a few veins to offer anyway but once those are blown then we have to struggle to find access for IV lines. Thank goodness he had the MRI under anesthesia so they were able to place another IV while he was under as the old one had started to fail.

We have decided that a PICC line will be the best option for Broc. It will make access for labs and medications much easier. Dr Harris is talking to Memorial Hospital to see if they would be comfortable with placing the line for Broc.

Broc will also be on a longer course of steroids after his vascular surgery so that way we will know that his fevers post op are infection related and not reactive response related. He will also have daily lab draws to monitor his eos levels.

Next week we will start looking at Brocs Hgb level to make sure it is 12 and above. If not then he will be getting EPO shots to increase his Hgb level. We do this so that when Broc goes in for his vascular surgery the surgeon is comfortable even if there were to be a little blood loss. The heamo-dilution and cell savage machines will be used during surgery to help prevent extensive blood loss.  

For now we have many app to follow up with as well as lots of things to get in place before his next surgery. We have to be very careful around people or even being in a public place as Brocs immune system is already compromised and with him being on steroids its even weaker. An illness right now for Broc could be very dangerous. If you would like to visit please call before hand and also please do not visit if you have been around anyone that you know is ill.

We truly appreciate all the help with meals,looking after Lil Mark, putting him on the bus in the mornings if I am not here or watching him at home once the bus drops him.Thank you for all your love, prayers and support.

Broc is on an all liquid diet for the next 3 weeks so if you see him please do not offer him any food or candy as it will just make it that much more difficult for him.

Discharge Day



Discharge Day was extremely busy. Our team came to see him and said that from there standpoint he was ready to go as he was moving around more, his belly had finally woken up and his chest was sounding much better. It was very crackly due to him not moving around and expanding his lungs. Only thing that was keeping us was seeing the cardiology team. The NP of the surgery team came to talk with me about all his different meds. Then a nutritionist came in to talk to us about his nutrition for the next 3 weeks. Which by the way is proving to be quite a challenge.Lastly the cardiology team came in. A whole team of 8 people. Dr ,nurses,nps and students and residents. Apparently Broc is so interesting that everyone comes to listen to his heart and hear his story. Cardiology felt that his blood pressure could have been another reaction response to stress/trauma on his body from the surgery. They did say that there was room to go up on his heart med to cover him in the event that it happened again. So they increased his heart med too.
They want his BP monitored at the peds office next week and then in 2 weeks we will see Dr Capannari to check on his BP and make sure his heart is once again good to go for his next surgery in Jan.

I really appreciate that the team asked me if I felt comfortable taking Broc home and did I think he was ready to go. There is nothing worse than a dr/team that is wanting to shoo you out the door and you as a parent doesn't feel that your child is ready to leave.

I cannot say enough how impressed I was with the surgical team that handled Brocs case. The team learnt a lot from Broc. Typically a child that has a Nissen procedure leaves the next day, not 4 or 5 days later.They were really happy with all the extra notes I was able to give them about the possible reactions Broc may have. He ended up having all of them and more.

We as parents and drs learnt a lot about patience and how one little boys body can dictate a lot. We learnt about all the new reactions Brocs body has now.It does seem that with every  surgery/trauma his body is ore and more effected.

This hospital stay I was able to chart everyday and I was very much more involved with his care. I never leave his room unless I really have to.In this case I was so glad I was there to witness the episode he had so that when it happens again I will know whats happening and it wont freak me out as much.

Finally once all the medications and follow up apps were scheduled we were able to pack up and leave. We had some truly wonderful nurses that took great care of Broc too. Some we shared more than a patient nurse relationship. We became friends and learnt a lot about each other.I had never before hugged a nurse goodbye before but this time we did.

Thank you too for all the wonderful friends we made in Indy. Thank you for all the cards,visits,phone calls and texts.Everyone of them means so much to Mark and I.


Post Op Day 5

Dr Boaz came to see us and let us know that his brain MRI showed very turbulent blood flow but that is because he made such a big space for his brain to grow into. Not a bad thing at all but it was just a finding on the MRI and wanted to explain it to me.



He said that he didn't see anything on the MRI that would contribute to Brocs choking episodes. He does recommend that he have his laryngeal cleft fixed next year sometime. We will probably schedule it after his recovery from his leg procedure or towards the end of it.

His CBC looked good. His platelets had come up. His WBC had also come down. What was concerning is that his eos count has started to climb. I pretty much knew that was going to happen as Broc was still running temps. His immunologist was contacted and it was decided to start Broc on a course of steroids for 3 days to knock the eos count down again. We will re test his CBC on Sat to see where his numbers are again. Depending on what they are we will re test again 3 days later. If his eos number is trending up again we will do steroids again to knock the inflammatory process down again.

The rest of the day went fairly well. Broc did nap again. We discontinued the morphine to see if he would tolerate his pain without it. He did really well with that. We then started loratab and kept the IV toradol. We could also use valium as needed too.



That night Broc had a terrifying episode where he started shaking, his lips turned blue and his heart rate when crazy high. The episode lasted about 10-15 minutes. The blue lips were only about a minute or so. The nurse came in to check him over.As soon as the episode finished he was exhausted and begging to sleep. It was as if his body was totally wiped out from it. The rest of his vital signs were stable only his HR was still a little high at this point. She went to page the team and they are also consulted with cardiology.They said that if everything was and his vitals were stable then they would just watch to see if it happened again. Needless to say I never went to sleep that night.I called Mark and we talked at length about it. While I was on the phone with him Brocs HR started dropping into the 50s while he was sleeping. That was very scary for us so we had the team paged again and a Dr came over to watch the monitor for a while and look him over. He listened to him and said that everything looked okay, but they would consult with cardiology in the morning.

I never got much sleep that night as it was close to 12:30 when a team Dr came in to look at him. I only got a little sleep as I woke up every time he moved.

 

Monday, December 8, 2014

Post Op Day 4

Yesterday was truly a whirlwind and roller coaster all in one. Brocs blood pressures were really high yesterday, his fevers were elevated again and he was much sleepier than usual. Cardiology came to consult with us and get all the info on his history. There plan was to watch him till last night with blood pressures and if they raised again then they would consult nephrology. Well they did stay high last night too so today while he is having his MRI they are checking his kidney function as well as aCBC  to check his eos count and platelets too. Immunology will be consulted too along with Dr Harris in South Bend to figure out a plan to see what will be done once we are home to handle his eos count,fevers and other immune responses that he is having.
If his platelets have not rebounded to where they would like them to be heamatology will be consulted too.
He drank more yesterday and also 1 bottle of formula. He is supposed to be drinking 4-6 a day to keep up with all his nutrition. His belly is still distended. It was looking better yesterday morning but by last night it was all swollen again. He has been having miralax everyday and they gave him something else yesterday too to help his belly wake up. We may have to do more today. We are going to see if he can do without the morphine today and only use the toradol and start Valium. He is getting loratab for his fevers as well.

This time round has really been a rough ride. They are struggling to find access for him. Many of his veins have blown and now while anesthesia was putting him to sleep he said that his IV is not working well so they will put in a new IV for him while he is under. Thank goodness for that as Broc is starting to get very vocal about getting lab draws and other things done. Normally he doesn't mind at all,he would just lay there but Friday night it took 4 of us to hold him down.

I feel so bad for him because January's surgery is a major surgery where he will be in ICU for a few days and then on the floor for about a week. But with all the new issues we are having with this surgery we honestly don't know how it will go. We have been told by the team that it will probably be worse as every system in his body seems to be more and more effected with each surgery.
We have also been told that when you walk into his room and see a little boy playing his iPad he looks like your typical 7 year old healthy little boy but inside he is a very sick little guy.

There are lots of things to figure out today. Once the MRI is done we will know more and also once the labs are back. Here are a few pics from yesterday. The JOY in our day yesterday was that we got to face time with Daddy and Lil Mark. It was so nice to see there faces and hear all about what Lil Mark has been up to.

I will post another update once we have spoken to the drs and got his results back.
Thank you for all the love and support that we have been shown from all over the world.





Sunday, December 7, 2014

Post Op Day 3.

These are some of the crazy blood pressures that Broc has been having since surgery.

We had the Carr family visit us last night. These girls are Mark and Brocs buddies. THey have grown up together. Even though now they hardly see each other cause we are so far away anytime they see each other it's just like old times.        


Our buddy did spike a high fever yesterday afternoon. IT really took the wind out of his sails. HE was not a happy chappy at all


 He also had some crazy high blood pressures yesterday. They have been erratic like this since he came out of surgery.




These sweet boys and their mom and dad came to visit us yesterday morning. It was so lovely for Broc to have little people visitors instead of the adults coming to see me all the time. Make no mistake I love the company and support you have all given. Broc was so happy that someone could play his new game on the iPad for him. At the moment all he can pretty much do is watch with only having one hand free. Thank you too for staying with Broc so I could run down to get a bite to eat. It's so difficult trying not to eat in front of him. Mark and I are still trying to figure out how that will work at home. 

Yesterday Broc had a lot of different number that were concerning to many people. His platelets were low, his Bp was high and then at times his bottom number was too low. He spiked a really high fever. So after talking to the drs they ordered a CBC. Most of the numbers were reassuring to us. Unfortunately he spiked another fever again last night.
It seems that all of these happenings are part of the reactive inflammatory process that happens to Broc after a surgery. His drs were hoping to avoid this happening by giving him the steroids before during and after surgery. His eos count has come up from Friday but is still in the normal limits. They will do another CBC tom while he is under anesthesia for his brain MRI. At that point those numbers will be able to tell us a lot. 

Broc did get up in the chair yesterday but I know they would like to see him walking around. Unfortunately with him feeling so bad with the fevers that's proving really difficult. We have started one of his pain meds orally and also started his meds orally too. He only drank 2 oz of formula yesterday. He needs to be drinking 4-6 bottles a day in order to get the proper nutrition. He is drinking Gatorade and eating pip sickles and loves his bowl of ice chips. Slow and steady wins the race. Monday will be a busy day with more anesthesia and his brain MRI. We are really hoping to be leaving Tuesday sometime but who knows. 

Thank you again for all the love and support you have all given us. Even though Daddy and Lil Mark are together we all miss being together. Hospital stays are really hard on each member of the family in a different way. 

Saturday, December 6, 2014

Post Op Day 2.

Things are still a little crazy here. We are havig a very hard time getting Brocs pain under control. He is having a lot of break through pain. They did give him Valium last night which seemed to work really well and we both got some really good sleep. After his 4am vitals check and blood sugar he is back to sleep again.
His blood sugars seem to be coming back down. We hoped they would as the decadron doses have been stopped now. His bp is higher than we like it to be. They have been watching it very closely. They are hoping once his meds start today it will come back down. If not then cardio will be contacted to come and look at him.
He started on some formula yesterday. The only way he will drink it is over ice. Needless to say we need to stock up on ice at home. Once we get home from the hospital the home health company will deliver  his formula to the house.
We are planning on doing his sedated brain MRI on Monday to see how his Chiari repair is doing and also how his csf flow is doing too.
Pain control is a big thing we are working on. He he has to be on all oral pain meds before we can think of  leaving. Also his belly has not woken up fully yet to digest his food. Everyday they can hear more and more rumbles so hoping it will wake up soon. Surgery is so hard on Brocs body. It gets so stressed out and every ounce if his body is effected. His breathing is also still very shallow due to his pain. We need him to take deeper breathes to expand the bottom of his lungs so that we don't end up with pneumonia. Broc did get up in the chair yesterday which was very painful for him to move there but moving around will help the gases escape that they pumped into him for the procedure, it will also help expand his lungs as well as help his belly wake up more so moving is a really good thing for him but with his pain it's a little tricky.
Through everything he is being a trooper. He is pushing through the pain when he has to move. Today will be a little more painful for him cause they want him to walk around today. That is so hard for a mom to watch your baby cringe in pain but you know it will only help them to heal and get on the road to recovery. He is asking for food all the time but cannot have any solid food at all. The concern is that when he had his brain surgery in August even his internal sutures that are supposed to dissolve came out through the skin in some parts causing his incision to open back up. Now because we cannot see what is happening inside of him they don't want to risk any food particles getting stuck or causing any damage to the incision. That is why they have waited till today to even start his meds. He will not be swallowing any pills either so we have to change his meds over to liquids.
Brocs body needs lots of patients and time to heal especially with the fact that he will be facing another major surgery in a month.

Thank you to everyone for all your love and support. We truly appreciate all the phone calls, texts and words of confort. We truly have a living brotherhood that we are all part of.
 Mark and I want to thank 2 special little boys for writing such wonderful cards for Broc. To read such encouraging worlds from such young people is truly heartwarming and loving. We are hoping to meet these little guys soon.







Thursday, December 4, 2014

Night of surgery

Mark and I would like to thank all the brothers and sisters from the local congregations in Indy. Your love and support means so much to us. Especially that Mark cannot be here with us. Thank you too for the gifts and cards for Broc and Mark. Thank you for thinking of Lil mark too.

This is Brocs fluids and pain pump that is trying to control his pain. He is allowed to push the button every 10 min but it seems like its not keeping his pain at bay. They are having to give him extra doses of pain meds. We are also using ice packs to help with the pain.



Broc was having some oxygen issues when he was coming out of anesthesia. Normally it's expected but it was going on for longer than they liked so he was given pain meds in the PACU to see if his pain was causing him to breathe shallow. Fortunately the pain meds worked to bring his O2 up. 








We are hoping for a good nights rest. Broc will he having a brain MRI tom too to check on his progress from his chiari surgery. I will update tom morning. Thank you again for all your love and support, cards and prayers.










Last update

Everything went well. On my way to we him.

Nissen surgery update 2.

They still have the scopes in and are still freeing up all his organs and ligaments to start wrapping his stomach.
Once they wrap it then they will have to stitch everything into place. There is quite a crowd of people here sitting here with me.
Until the next update.

Nissen surgery

Broc did great this morning. He didn't even want Versed. He went back with the child life specialist and her iPad.






Our first update. 
Everything is going well. He has his IV in his left hand and the scopes are in for the procedure to start. The actual procedure started at 8:40 am.
It's almost time for the next update. 



Wednesday, December 3, 2014

First Home Infusion and hospital update

Monday Broc had his treatment at home for the first time. He was a little bit of a difficult stick but they finally got it. We know next time to use his hands. His veins in his arms are just too wobbly and move around a lot or they blow.

A port has been discussed a few times with various drs regarding his IV access but with his immune system and his heart is just too scary. It may be something we may have to consider down the road though.


Broc relaxing on the couch watching the ipad. The comfort of home is so warming.


Nurse Debie making sure all Brocs vitals are stable. She was so loving and kind even when Broc was screaming so loud he almost made us deaf. At least we know that he can make his needs known. Honestly I think its better for Broc to scream and express himself when he is in pain. He goes through so much so when he says enough is enough then you know he is at his limit.


Mark came home from school and joined him on the couch.

I loved the fact that I was able to cook dinner as well as a few meals for daddy while I will be at the hospital with Broc. 

Please keep our Buddy in your prayers as he has surgery on Thursday. We are hoping this will be a relatively easy surgery for him. Unfortunately with Brocs heart the way it is any anesthesia can be so dangerous for his heart even if the surgery is easy. We are also concerned about the complications his body will have afterwards. Brocs body does weird things after surgery. His immune system is so unstable that its doesn't know how to cope after any stress its been through. We are doing some pre-op meds to see if it will help him.

Broc  loved getting all the cards you all sent him through the hospital so here is the link again if you would like to send him a card.

http://iuhealth.org/riley/for-patients-and-families/patient-postcards/

Even if it doesn't arrive before we leave the hospital they will mail it to the house.

Please feel free to call or text while I am at the hospital. We love all the support and prayers from all our friends and family.

I will post updates on the day of surgery. It should last about 2 1/2 hours.

Thank you for all your love and support.



Tuesday, November 18, 2014

It's only 1.2cm

We have had many people tell us that Broc's legs difference is no big deal. So many people live with different size legs. All he needs is a lift in his shoe or a shoe that's made for him with a bigger heal.
Brocs issue is much bigger than that. As you read in my previous post about his upcoming vascular surgery he has 2 big occlusions or blockages in his right leg. His leg is not getting the proper blood supply needed to grow properly.

This in turn causes his hips to be out of alignment. His knees to be at different angles, his ankles to handle different weights and angles too. Before he had his first vascular surgery his leg sizes were so vastly different that his legs looked like they belonged to 2 different people.



This pic is from 2012 before he had his first surgery. You can see how much smaller everything on the right was and shorter too.

 So far this time round thankfully they are not that bad and we have caught this early enough for it to not come to that. His foot size is one size smaller than the other which makes buying shoes very difficult too.

Here are a few pics to show you what a leg difference looks like.


This picture is showing how his right leg is getting smaller and thinner than the left leg. His right ankle is also higher on the right than the left.


This is not a great pic but I wanted to show the difference in his legs when he is lying down.


This picture I think is self explanatory. It shows how much higher his left knee is than his right when he is lying on his back with his knees bent. In this picture too you can also see how much smaller his knee is than the left leg. His veins are also very prominent in the right leg cause the blood is working so much harder to get to where it needs to be.

We know the next couple of months are going to be very busy and we truly appreciate any help that you have to offer.
We thank you for all the love,prayers and support.
 

Tuesday, November 11, 2014

Brocs First Treatment

Sunday night we packed Brocs bag with dvd's, Iggie his blue bear and his IV play kit. We also packed some snacks and drinks for mommy too.
Yesterday Broc and I started off the day with putting Emla cream on his arm so that we could be ready for the day. This cream helped numb his arm so that when the IV was started he wouldn't feel anything. It worked wonders.



Once we got to the hospital we checked in and went up to the floor. Some of the nurses recognized Broc from the previous times he was on the floor. Except this time he was looking very well and chatty.


Broc wanted to document this day with pics. Next time I don't think we will do as many pics. Once we got to his room he took out Iggie and all his kit.

Broc went to work putting on his gloves,getting all the supplies out that he needed. I should have videoed it. He was so cute in telling Iggie what he was going to do, just like the nurses do for him.





Once Iggie was done then it was Brocs turn. His nurse Yvonne did such a great job. The whole process went so smoothly. Once she left we got Broc and Iggie settled into bed.


I even had to hang Iggie's IV bag on Charlie which is the name of Brocs IV pole. Ever since he was in the hospital when he was 2 years he named his IV pole Charlie. Everytime we go to the hospital Charlie is there with us too, never mind that its never the same Charlie.

The day went pretty well. Some of the meds made Broc a little sleepy so it was a little difficult to do his homework but we managed. Thank you Reathel for coming to visit us so that I could run down stairs to get some lunch. The company was wonderful.

Around 2:30 I left to get Mark from school and then he settled into the room too to get his homework done too.



Once his homework was done he joined his Buddy on the bed to watch a movie. It really helps that Mark is so used to hospital life. It really makes it so much easier. Before when Broc hadn't been in the hospital so often Mark used to get such anxiety. Now that he knows Broc does come home after being in the hospital for a little while and that he goes there to get better he is much less anxious.

Once we were all done Broc got his IV taken out which is the worst cause the tape pulls so much on his little peach fuzz hairs on his arm. Iggie got his IV taken out too and Broc put a band aid on his arm too.



Next time we will come after school so that Broc will not have to miss school. Mark will come with us and we will just hang out. Maybe daddy will join us too for dinner. Wings or Pizza party sounds good to me. YUMMY!!!!

PS. In case you were wondering the blue bears name is IGI. He was sent to Broc in the mail to help with medical therapy play. Broc has named him Iggie. 

Thank you everyone for all your love,prayers and support.