We moved him into the chair for the day so he could sit up and expand his lungs more. Unfortunately as soon as we moved him he got comfy and went to sleep. He slept for 3-4 hours.
He schooled for a while today and practiced some reading too. He really loves studying Engineering.
Ophthalmology came by to look into the back of his eyes to make sure he doesn’t have any infection lurking there. He was very scared when the drops went on to numb his eyes. He is seriously not a fan of having his eyes dilated. He did so well.
Genetics came over to discuss some results with me. We are still waiting for some more results to come in then we may have a sort of diagnosis for our Buddy. Dr Graham will be contacting NIH to see if they can shed any light on these new results. He is extremely rare and continues to stump science.
Once she left we had a visit from the Social worker. She was very informative and very helpful in showing me some resources we can use. She is also going to organize a care conference for Bric before we go home.
Tomorrow Broc will be getting a picc line so that we can start TPN again. We have to wait about a month to make sure the fungal infection has cleared his body before we think about putting in a more permanent line again.
We are still dealing with daily fevers. His lungs are still not super happy but getting better every day. We are letting him rest when he needs to.
Thanks for all the prayers, love and support.
🐸🐸🐸🐸
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