Thursday, August 28, 2014

MRI and Spinal Tap

Yesterday Broc and I went down to Riley for his MRI and spinal tap. Both him and I were very nervous as he has never has a spinal tap before. We have done the MRI thing a bunch of times. We had a quite a few visitors yesterday which was very nice. I got to meet another Chiari mom too which is always lovely to compare stories and learn from each other.


Trying out his mask with his favorite flavor AW Root beer. He went under watching Rescue Bots on the ipad. He gets a little feisty going under so it normally takes a few of us to hold him down.But I just talk to him and reassure him while holding the ipad so he can watch his videos. But believe me its really no fun having him crying out to me to pick him up and take him out of there. He is truly such a brave boy!!  

Dr Boaz said that nothing jumped out at him from the pics they took. He said that they made a lot of space for his brain to grow properly and was very happy about that. He was however very shocked at the numbers that he got back from Brocs spinal fluid. He was extremely surprised that Broc reacted to the synthetic patch that he used.

His numbers showed an inflammatory allergic reaction. He has given Broc a RX for steroids. We are hoping that this will help calm down the inflammation and also help reduce the fevers. Overall we are hoping that it will help Broc to feel better and slowly regain all his energy.

He is still not eating all that well but they have said the steroids will increase his appetite too.

We are hoping to start Brocs online schooling soon as well as his teacher visits to the house.

Unfortunately the steroids will lower his already compromised immune system so we have to keep a very close eye on that. Lots of handwashing and sanitizer will be needed.

If anyone is ill or has been around people that have been ill please don't visit. This is not to be rude but we really need to be careful about Broc getting ill.

We will see Dr Moustafa today as Broc will be getting his stitches out and then we will speak to him about the precautions we have to take.

Lastly please pray for Daddy Mark as he will be having a small surgery on Friday too.

Thank you to everyone for all the love,support and prayers.

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