Monday, May 21, 2012

Trip to Houston and More....

Broc and I went to Houston last week for a few days to complete the chromo study we did in Oct 2011.Our flight there was a nightmare but our stay was loads of fun.Although we only had one day to sight see and one day for clinic,we had fun.It was a really short trip.

On our free day Broc and I went to the zoo and then later that evening to the aquarium.

Here are lots of pics from our trip to the zoo.





You can never get too many hugs and kisses from Buddy.














How do I look in 4D glasses???































It was an awesome day.Such a pity Daddy and Mark were not there to share it with us.Broc and I were lost without them.

Here are some pics of the Aquarium.



Buddy was makng sure this shark was not real.





















 Still shocked that we just drove through a tunnel of sharks.

 Jaws going back under the water.He came out so fast we never even had time to process him coming out of the water.



He wanted to run in the fountains so badly.

 AAHHHH.... The famous diva cows.

Buddy wanted to take these fish tanks back home with us.He loved them so much.

We are not sure yet what all they discovered at our trip this time round.We didn't have a meeting at the end but will get notes in the mail.
We did discover that he has a qualitative immune deficiency and that they have not yet discovered a test to figure out which part of the immune system so until they do we just treat the symptoms.We are still hopeful that the Mito specialist will have some info for us in July.

We have a Super Speller in our family.He has scored 100% for his spelling test every week.We are so proud of him!!!



Our in insurance has finally approved Brocs O.T. It turns out all they needed was a different diagnostic code which we now have since having an abnormal brain MRI.He has his first session on Thurdsay.


We have a lovely family picture taken of us this weekend.We really wanted to the boys to still be wearing their jackets and ties but with it being 98 degrees outside who can blame them.





Broc and I have a meeting with his new school tom.It is the school where Mark goes now.We are going to meet his teacher and to discuss any challenges that he may have next year.Also any therapies that the school may be able to offer him.We are also going to work out a health plan for
Broc too.
We had a really scary episode after lunch at the Assembly this past weekend. He was really shaky after lunch and said that he wasn't feeling well.I took him to get some water and by the time we reached the water fountain he was as white as a sheet.I took him to the First Aid room where they checked his heart rate which was high. They asked what we had been doing and told them we had come in from lunch.They determined that it was too hot outside for him and that he was over heated and his body was having a hard time cooling itself down.He was also complaining of chest pain too.
We gave him some cold water to drink and put cold clothes on his neck and forehead to help him cool down.
We do know that Broc does not handle the heat very well but that has never happend before so we are going to have to lay some ground rules down for the school as far as recess and being outside during very hot weather.
I may even have to pick him up from school on very hot days as he may not do very well on the hour bus ride home.

Tomorrow , 3 weeks we will be heading down to Michigan for his surgery.
We pray that he stays healthy till then as a lot of planning has gone into this surgery.

Next week is the end of year picnic for Broc as well as his graduation ceremony.








6 comments:

  1. Beautiful pics - especially of our little Broc.
    Scary about the heat, but good to know what the problem is. Then you can take precautions.
    And Kerrigan, you really look such a happy family. Thanks to Mark looking after you all so well.

    ReplyDelete
    Replies
    1. Thanks Ouma and Oupa.He does an excellent job.He is such a loving husband and father.I was truly lost without him although it was only 3 days.
      Love you lots.

      Delete
  2. Your zoo pics make me feel a little homesick :) My oldest was born in Austin and the Houston Zoo was one of our favorite day trips! My husband's family still lives there--next time we visit, I may have to plan a zoo run :p

    That is a lovely family pic :)

    ReplyDelete
    Replies
    1. Thanks Piper.I must say the highlight was the 4D movie and Dora and Diego.As an adult I LOVED IT.Well worth the money.

      Delete
  3. What is a qualitative immune deficiency, and how did you get that diagnosis? What does that mean? And why don't they have a test for it?

    ReplyDelete
  4. I guess they way they explained it was that all the reg tests they do for immune function come out normal.It is the actual function of those anti bodies.They can either not work at all or over work so there fore they are useless too.I think its a dx of exclusion.Not sure why they don't have a test for it yet.They are hoping that we can get into another research study regarding that.

    ReplyDelete