I did end up having surgery to repair the tendons in my elbow. They said it was one of the worst repairs they have seen is a long time. It was so severe that I ended up getting an anchor put in that will grow onto my bone. My restrictions have been very limiting and hard to deal with, especially not being able to drive for almost 6 weeks. With Broc and myself having so many appointments we had to rely on friends to get us places. Thankfully the friends were very helpful in that regard. I had to have more procedures myself which made things difficult too but we got though it all.
In the beginning of November we had a care conference with all the members of Brocs team. I'm so happy we had that meeting. We learned a lot about Broc and all his team members had a chance to weigh in on what they thought would and wouldn't be beneficial for him. Some medications were held and some were added in. We were told about a study at the NIH which we will look into. Having a new set of eyes on Broc could always be helpful. Little did we know that we would loose a vital member of his team a couple weeks later. We have since been given a new Dr and will be meeting her at the end of February. Broc spent a week in La Porte Hospital for a virus and neutropenia. It was a rough week for everyone but we made it through. Thank you to all the friends that came to visit and support us.
Little Mark has started guitar lessons and loves it. He has wanted to play for a couple years now but I was always worried about him not making his lessons if Broc was in the hospital. Thankfully a dear friend of mine was able to speak with the teacher and they came up with a good plan for us.
Daddy unfortunately had to have emergency surgery for his kidney stones but is recovering well. Little Mark was the only one to stay out of the hospital last year. YAY Mark!!
We have been passing the time by playing lots of board games and video games. The boys love the dancing games. Especially when they have friends over.
We have had a really mild Winter so far which we are loving as the freezing cold temps cause us a lot of pain but we have had some snow fall. It looks so pretty on the trees.
Broc doesn't have any planned appointments this month, so we are hoping for a quiet month. He is still struggling with his viral episodes that he deals with. Hopefully he will be getting an iron infusion soon too.
I hope to update more frequently on here too. He does have a facebook page called Brocs Journey if you would like to follow him there too. Just ask to join or send me a pm and I will add you.
We have some exciting things happening this year.
Thank you for all the continued love and support.
🐸🐸🐸🐸
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