Sunday, October 21, 2018

One month post Heart surgery

Wow so much has happened in a month. Broc saw his vascular team in Ann Arbor,MI. It was an early morning for us but we made it safely.

We had to take our mandatory pic in front of Big Bird.


Dr Eliason was very happy to hear that everything went well with Brocs Heart Surgery. Unfortunately Brocs leg length discrepancy has moved a little. Last year his legs were only 1mm apart and we were ecstatic but unfortunately they are now 3mm apart. I know many think that 3mm apart is no big deal. It's still within the margin that's allowed. Once it moves to 5mm then we have to start talking again. We are really hoping that Broc will never need anymore interventions done on his leg. Every year we go into this appointment waiting to hear those numbers. So we breathe and wait till next October till we get the next set of numbers. Broc should have moved to every 2 years but because his numbers never stayed the same and we all know how fast Brocs body likes to change we will see his Vascular team next year.

Mark and I did a little homeschool field trip when we had 80F degree weather. It was such a great day catching fish with him. Just enjoying his company and excitement everytime he caught a fish. He caught 3 in total and released them all. We also saw a baby snake.








We had very exciting news this month. Brocs wonderful story was aired on our local channel. You can watch it here if you missed it.

https://abc57.com/news/real-michiana-giving-back-while-beating-the-odds

The story behind why I was so emotional was because the day it was aired Broc fell very ill and I knew all through the interview and the filming that we may end up in the ER later that night. Broc went down hill very fast and he did end up being transferred to Riley Childrens Hospital later that evening. Unfortunately Mark and I had our 15th Wedding Anniversary weekend planned with all the necessary nursing for Broc organized. Maybe next year we will try again.
Here are some behind the scenes pics.














Now onto Brocs Cardiology follow up. Dr Hoyer was so happy with his new heart function. Broc has no significant leakage with his Aortic Valve anymore. Everyone has a little leakage on some of theirs valves but nothing that would cause any concern and Broc is now in the category. He is still pale looking but did get an iron infusion which we are hoping will help his body. Brocs heart is doing so well that we only have to go back in a year and NOT 6 months. He may need a couple bigger doses to get his iron tank filled up. He still has another 3 weeks of restrictions. We have to be really careful during the Winter/flu season. Please if anyone is sick please stay away or if you have been exposed to anyone please do not come visit. Even a simple cold can put Broc in the hospital. We do try and take as many precautions as we can when we are out if we have to be.




We always have to fit in a little fun time at the Child Life Zone at Riley.

Thank you for always supporting and loving our family.
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