Broc had a good night with stable fevers. They are still there but not spiking. I was able to rest as well too. We had the GI team and ID team this morning. With giving him zofran every 4 hours his vomiting and dry heaving have slowed down. He did test positive for c diff so treatment for that was started this afternoon. We are not able to give him his regular pain meds when his pain is extreme so we are doing hot packs to help ease his pain.
The ID came in and confirmed that he did test positive for 2 types of yeast. The cultures for that could take up to 2 weeks to come back. We are hoping that the treatment he is on for that will help. They will only make the decision to pull his line once the yeast cultures come back. We are still waiting to see if he is growing anything else besides the yeast.
He was sitting up in bed today and Child Life brought him a small Lego figure to build. He was wiped out after that and is back lying down watching a movie. His body is very sick and he is very pale.
His counts continue to drop too so both his teams are watching those too.
Thank you again for all the love and prayers
Monday, July 31, 2017
Back at Riley Hospital
Broc fell ill again on Saturday. He had extreme body pain, high fever and chills. Before things got crazy we packed our bags and headed for our local ER. Broc was stabilized there and transported to Riley.
On the way in the ambulance he started vomiting severely. The driver put his foot down because they could tell things were looking worse. Broc was not awake for most of the time. He was extremely hard to arouse.
Once we arrived in the ER everyone was in high alert because of how he was 2 weeks ago with his extremely high fevers. He was moved to a room in front of the nurses station.
More labs and blood cultures were drawn and we started packing him with ice packs to keep his temp down which was very unsuccessful.
In the ER his vomiting and diarrhea continued. Once we got to the floor the decided to change his antibiotics due to the infections he had last time and due to the fact that he was already on antibiotics.
We continued to fight his fevers. Only if we packed him with ice packs did his fever stay below 103F. He started to become very scary at one point. We couldn't wake him up and his breathing was very laboured. His nurse decided to call a CART in him. CART is a specialized team that comes in to evaluate the child and see what else they can do to help or if he needs to be transferred to ICU. They decide to draw some extra labs for Broc and a fungal panel was drawn. The results from that said that 2 fungal were detected but they need to wait for the fungal cultures to come back. It is very possible that Broc has a fungal blood infection.
He stabilize and wake up some more once they started the anti fungal medicine. We are hoping for a much less calmer day today and more results.
Our Buddy is really sick so please continue to pray for him. We are not sure how long we will be here for. Thank you for those friends who have offered to help with Lil Mark. Please text Mark if you are available for next week. Hopefully by the end of the week we will have a better idea.
Thank you for all the love,prayers and support.
On the way in the ambulance he started vomiting severely. The driver put his foot down because they could tell things were looking worse. Broc was not awake for most of the time. He was extremely hard to arouse.
Once we arrived in the ER everyone was in high alert because of how he was 2 weeks ago with his extremely high fevers. He was moved to a room in front of the nurses station.
More labs and blood cultures were drawn and we started packing him with ice packs to keep his temp down which was very unsuccessful.
In the ER his vomiting and diarrhea continued. Once we got to the floor the decided to change his antibiotics due to the infections he had last time and due to the fact that he was already on antibiotics.
We continued to fight his fevers. Only if we packed him with ice packs did his fever stay below 103F. He started to become very scary at one point. We couldn't wake him up and his breathing was very laboured. His nurse decided to call a CART in him. CART is a specialized team that comes in to evaluate the child and see what else they can do to help or if he needs to be transferred to ICU. They decide to draw some extra labs for Broc and a fungal panel was drawn. The results from that said that 2 fungal were detected but they need to wait for the fungal cultures to come back. It is very possible that Broc has a fungal blood infection.
He stabilize and wake up some more once they started the anti fungal medicine. We are hoping for a much less calmer day today and more results.
Our Buddy is really sick so please continue to pray for him. We are not sure how long we will be here for. Thank you for those friends who have offered to help with Lil Mark. Please text Mark if you are available for next week. Hopefully by the end of the week we will have a better idea.
Thank you for all the love,prayers and support.
Friday, July 28, 2017
An awesome day at La Porte Hospital
We came to the hospital for Brocs monthly infusions but we had a surprise up our sleeve. Well a couple actually. We donated a book to the hospital kids corner and met the CEO Ashley. They had little gift bags for the boys each. In the bags they had a lab coat each with their names on it and a tree frog. They also got a water bottle, mini first aid kit, a freezer pack and a hand sanitizer.
Once they opened their gift bags and put on their lab coats they were delighted to hear we were going to tour the hospital lab and visit the helipad.
Visiting the lab was an a amazing experience. We learnt how they run the blood tests and we saw the different cells under the microscope. We also got to see how blood cultures are done. The boys loved seeing the different bacteria that were growing.
Visiting the lab was an a amazing experience. We learnt how they run the blood tests and we saw the different cells under the microscope. We also got to see how blood cultures are done. The boys loved seeing the different bacteria that were growing.
Thank you to all the friends in the lab that made this possible and for taking the time out to show us what you do.
As we got back to our room Mark from maintenance had another surprise for us. A trip to the helipad.
Wow what a day. Thank you everyone for a wonderful day the boys will never forget. La Porte hospital is our second home apart from Riley. Everyone here knows us.
Monday, July 24, 2017
Day 5&6 at Riley
Yesterday was a good day. We had a bunch of fun visitors. Broc was able to laugh, build legos,play games etc.
Even though there is a big age difference between these kiddos,you would never say so. They are both so loving towards Broc.
We were able to leave on Friday afternoon. Thank you to our dear friends who drove down to pick us up. Thank you to all the friends who helped out with watching Mark.
Thank you to all the nurses and Drs on 7 West and 7 East that took such great care of Broc and really listened to me when I had concerns about Broc.
Nurse Kaylee giving Broc his meds.
We were able to leave on Friday afternoon. Thank you to our dear friends who drove down to pick us up. Thank you to all the friends who helped out with watching Mark.
Thank you to all the nurses and Drs on 7 West and 7 East that took such great care of Broc and really listened to me when I had concerns about Broc.
Wednesday, July 19, 2017
Day 4 at Riley
Lots has happened since I posted last. We moved out of picu onto the GI floor. Brocs fevers are staying low grade. He is having some bp issues which we are giving him more IV fluids for. He went down to the child life zone yesterday for a little break. Playing games really helps keep Broc distracted.
Face timing with daddy and Mark really helps a lot. We miss them both so much. Being apart is not easy. Even though Broc was sleeping when Markie called, it was good for him to see his brother.
We have had a few Indy visitors which has been lovely. We also had a furry visitor called Maggie. Broc loves it when the furry friends come visit him.
The team is really happy with the way Brocs labs are looking. Some are a little concerning but nothing alarming. His body has taken a huge hit with these 2 bacteria's. We found out that he had Klibsiella and Serratia. Two very dangerous bacteria on their own nevermind fighting them both at the same time. The team keep reminding everyone how sick he was and close to not making it. They are all amazed. We are hoping to leave Friday sometime.
Thank you again for all your love,prayers and support.
Face timing with daddy and Mark really helps a lot. We miss them both so much. Being apart is not easy. Even though Broc was sleeping when Markie called, it was good for him to see his brother.
We have had a few Indy visitors which has been lovely. We also had a furry visitor called Maggie. Broc loves it when the furry friends come visit him.
The team is really happy with the way Brocs labs are looking. Some are a little concerning but nothing alarming. His body has taken a huge hit with these 2 bacteria's. We found out that he had Klibsiella and Serratia. Two very dangerous bacteria on their own nevermind fighting them both at the same time. The team keep reminding everyone how sick he was and close to not making it. They are all amazed. We are hoping to leave Friday sometime.
Thank you again for all your love,prayers and support.
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