Recovering at home

We arrived home on Tuesday evening. We were very happy to be home but also very worried how Broc would do. He has been having issues with low blood pressures so we have had to give him lots of extra iv fluids to keep his blood pressure up. He is breathless just by walking to the bathroom and back. He is not allowed to do any physical activity at all. Not Wii, x box or anything like that. Not even playing with his brother. We were playing a card game today and he was getting out of breathe cause he was getting so excited.

His blood counts are coming up very slowly. He got another EPO shot tonight at the Peds office. They were kind enough to have us sit in the car and go straight back to a clean room. We also made the appointment for the last one of the day so that we would encounter as little people as possible. His ped is happy with how he is doing under the circumstances. As long as we can monitor him well and keep him stable at home then he can stay out of the hospital. Being in the hospital this time of year or actually any time is really not a good idea as there are so many viruses and sick people in the hospital and that is not a good combination for Broc right now. With his counts being so low it would be really scary if he were to catch any virus now.

Thank you for all the love, support and prayers.

I love seeing these little faces. When they were this little we had no idea of the journey that lay ahead for us. Today they are both strong, loving and caring boys. Lil Mark has had to grow up so fast and we are so proud of him.