Friday, June 13, 2014

A busy week!!

Monday was the Dairy Farm then Tuesday was a rest day to recover from all the walking.
Wednesday Broc and I drove down to Riley for his brain MRI. We had the lovely company of Travis and Kari. Thank you so much for keeping us company.You guys are great friends even if we only see each other during a hospital visit.


Waiting to go back. Broc does have a croup virus so he really was not up to anything that day.


He was so ready to get out of there.We had to slow him down with wanting to eat and drink.The nurse was hoping he would sleep a little once he came back but all he wanted was his mommy and to watch his dino movie. We were so worried about his airway with him being sick but he did so well. I was even allowed to go back with him while he was breathing in the gas to go to sleep. Man what a fighter he is. It took 3 of us to hold him down till he fell asleep. but once he started breathing it he was out in a couple seconds.

We got great news from his MRI.There has been no change since his last one in 2012. Great news but still does not explain why he is having all the regression issues. We are still waiting on Dr Boaz to let us know if there was any Chiari symptoms present.

Thursday Broc had his first evaluation with the WOW Vision Therapy Center. What a wonderful place with loving people. The testing was really interesting. All the testing that the Dr did he did on me too so that I could know what he was doing with Broc. I really like how involved the parents are even in the beginning process.

By the time we left Broc earned 3 more dx's.
1. Convergence Insufficiency (CI) is a common condition, characterized by a difficulty or inability to effectively converge or align both eyes together to perform near oriented visual tasks, like reading and computer work.
2. Oculomotor Dysfunction.Tracking is the ability to move our eyes from spot to spot while maintaining focus on the object we are looking at; it is an essential skill for reading and other everyday tasks.
3. Accommodative Dysfunction. Accommodative dysfunction simply means a focussing problem, particularly at near. This is not so much an eyesight (or clarity) difficulty as a problem in maintaining accurate, comfortable focus particularly with near work. 
Broc will have another hour of testing next week where he will be tested on his Visual Information Processing. After that the Dr will have a meeting with myself and Mark and we will decide on the best plan for Broc. He will also be sending a report to the school where they will accommodate Broc with different things that he suggests too.

Since Broc has no changes with his MRI we are really hoping that these new dx's will give us some more insight and we will better be able to help Broc at home and in the classroom. We are also hoping this will help Broc to eventually ride a bike without training wheels, falling less, and being able to stay more attentive.

Today (Friday) Broc had the last of his dental work done. He was such a champ that he didn't need any numbing meds at all. It was all done with laughing gas. So proud of him. He has been a rock star this week even though he is not feeling well.

We still have Cincinnati and Seattle ahead of us. We are hoping to have some family fun in between all the Drs and hospital visits.

Thank you for all you loving support and prayers.They are very much appreciated.
 



2 comments:

  1. As much as we hate seeing the list of diagnoses grow, it's good he's getting them so you know how to target treatment & therapy to help him overcome them :) Maybe some school accommodations will make it easier for him--I know with Sterling, he was getting frustrated with not being able to do what everyone else could but his IEP made such a difference. It took a while to find ways to help him but once they found methods that he connected with, his abilities grew by leaps and bounds!

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    1. Yes it is but unfortunately he does not qualify for an IEP cause he is getting A's in all his grades.They said only when his abilities are effecting is grades will he get an IEP. Although he gets A's he does struggle with a lot of things.He only has a 504 Plan. I am eager to see what Thurs testing will bring and also the conference.

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