Monday, August 12, 2013

What a day.................. 1 year follow up

Today was Broc's 1 year follow up for his ilio-femoral bypass surgery. We had really good spirits going into the appointment as he has not had any major effects.His pulse in his groin is amazing compared to before  surgery. His muscle mass has grown a lot too and his strength is coming back nicely too. He is able to ride his bike very well still with training wheels.

It was torrential downpour all the way to MI. I could hardly see the car in front of me. It was a very slow drive in but we made it in time.

We first had bone x-rays at the Children's Hospital then we went and had ultrasounds and ABI's done at the Cardiovascular Unit.


Look at that beefy looking right leg compared to what his leg looked like last year.



The boys love the long hallway with all the new arts and crafts. Here are 2 of the boys favorites. 



Onto the not so fantastic news.....
Dr E said that his ABI's looked great. In fact they are almost the same as they were in Feb, maybe slightly higher on the left which could attribute to his leg. He showed me pics of his artery and so far so good until he came to one spot and showed me the narrowing. Because of his scarring on the outside of his leg his scarring has also formed on the inside and almost cut off 50% of his artery.
So the bad news is he has possibly more than a 50% blockage in his new artery. So he is being scheduled for an angiogram asap. If it truly is a blockage and not just a flow issue then Broc will have to undergo another surgery where they will take a vein from his left leg and put in whats called a diamond patch to repair the graft. They want to act quickly as he has grown well with his new artery and his muscle mass is also doing well. If we were to loose the graft altogether then we would have to start with artificial grafts that do not grow with a person. We were told this could happen but it was very rare. OF course as we all know anything that falls into the "rare" category happens to Broc.

His legs are also still 1cm apart which attributes to his leg aches and overall pain sometimes as his whole alignment is off.    

We had a snack in the indoor garden before we left for our long drive home. It was very peaceful there listening to the waterfall.




 We always have to take a pic with Big Bird before we leave the Children's Hospital.  We drove home in the torrential rain too but thankfully it stopped after a while. Unfortunately there was a bad accident and the highway was closed for 3 exits. So we sat on the highway for at least 40 minutes not going anywhere.......



The boys did sleep for a while and then woke up cause we had stopped. I will keep you all up to date as things happen. Thank you for all the kind words and prayers for today.




4 comments:

  1. Thanks for the update Kerrigan. As you say, not the best news, but hopefully the new graph will heal better. Keeping you in our prayers and thoughts, as dealing with such health issues and falling into that category of 'rare' is never easy as the solutions don't always advance as fast with medical technology as we wish them to.
    From one 'rare' person to another
    Love Debz
    xx

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    1. Thanks Aunty Debbie, it is nice when rare people can relate.

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  2. I'm glad they caught it before any problems turned up! Hopefully Broc will get the easy road for once and won't need surgery.

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  3. Thanks Piper we really hope so but with Broc I don't think that will be the case.I jump everytime my phone rings to see if its the I.R. Team calling.

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