GI and ID update

The month we were away Broc was well except for a mild virus. Since we have been back we have seen GI and a new ID Dr.

GI.update:

Broc has had tummy pain since his last bout of c-diff in Oct. He is not able to eat big meals and sometimes not at all.GI has decided to d/c the Zantac in case the overload of reflux meds is causing the pain. If his reflux comes back then we have to go back to Zantac. We are also d/cing Periactin and going to trial Erythro. We have spoken to his cardio about cardiac side effects and he feels it is safe for Broc. Another concern for him is c-diff. We know that Brocs belly is very sensitive.

I.D. Update:

I.D. Dr was amazing. We spent over 2 hours with him. He also specializes in pulm so he was able to help us on that front too.

He changed his Q-var to symbacort to see if that will help with cutting down on his croup episodes. He also spoke about a swallow study in the future. His fevers are the most important issues that we are dealing with. He has ordered some gene testing for periodic fever syndromes which will help us eliminate some too. Since there are serious diseases on both my family and Marks family he is keeping a close eye on his fevers and is having us see a hematologist in the future too.

We have been given some things to try when he gets a high fever episode but he hasn't had one yet. He also wants blood work every 3 months to keep an eye on his numbers.

All in all I think we have a great team of specialists all under one roof and one hospital. Although the hospital is 30 mins instead of 10 min. I think it's worth it. The gene testing will take 6-8 weeks to come back. I will update when we have results.

Thank you everyone for your love and support.