Almost 24 hours - VEEG

Broc had a really good night last night.I kept waking up as I was so scared he was going to get tangled in his wires.He is normally a very rough sleeper.

He did not have any episodes last night. So we are still here. I personally don't think he will have any which means we are here till Sunday afternoon.That will be a good sign cause then we can rule out seizures for him.

The volunteers came in this morning and offered him som toys.You can guess what he chose?? Hot wheels and a race track. He is having so much fun with it. I was able to get some down time and a cup of coffee as the volunteer offered to play games with him.The wifi is really funky here so I came down to the family lounge to use the computer.

Not sure if there will be anymore news until we get home, if there is I will be sure to update you.

Thank you to our friends who are helping us take care of Little Mark. I do feel so bad for him cause he doesn't have an option he just has to go.He had a lot of fun yesterday and I am sure he will again today.

Here is our Buddy playing with his track.

Video EEG

Broc and I made the drive down to Indy this morning. We arrived here around noon and got settled in our room. They started hooking him up and everything was done around 2pm.
At first it was a struggle to get hm to calm down , but once he realized that it was not going to hurt he was fine and went back to playing games.

We have already read all the books that he brought with him and painted.We are a excited to meet new friends again.

While Broc was sleeping on the floor he started having myclonic jerks again. They were not as severe  as the first time and only lasted about 10-15mins. We thought he was cold as he was shivering but he wasn't. He wasn't even sweaty.

I guess after Sunday we will know more once the results are read.it will probably take a while before we get the final report.

On a great note, all Brocs labs have come back great. His eos. levels that were climbing are finally back to normal.