Day 3. He’s so handsome! Maybe I’m biased because I’m his mom! ❤️
Plan for the day:
- increase meds to keep working on getting him cleaned out.
- continue with IV hydration
- rest
When we came to Cincy a few weeks ago he was tested for a gene mutation that could possibly explain his bilirubin issues. He did test positive but only has one copy of the gene so either the other copy is missing or we are looking at something else. Either way genetics and the liver team will contact us to see what the next steps are. In the meantime everytime Broc’s body goes through a crisis being it a stressful event / illness etc his levels rise and he requires big amounts of continuous IV hydration to keep him stable.
We have been told to sit back and enjoy the ride best we can until they can figure things out for him. It will take a couple days to get him stabilized and out of this episode then they will see how he holds his hydration on j tube feeds and his home regimen of IV hydration.
Thanks for all the love and prayers 🐸🐸🐸🐸
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