Back home.

Yesterday was a crazy day. Broc was taken to surgery around 10am to get a new GJ tube. Thankfully it was sooner rather than later as it was slowly but surely crumbling in our hands and we didn't know for how much longer it was going to last. Surgery went well. There was a lot of mix ups about his care at home and what antibiotics he should be sent home on. That took some time to figure out.

We discussed at length what more we can do to prevent these cellulitus infections. Unfortunately with all Brocs immune issues and his mutation which makes all things Broc wonky anyway we really are doing everything we can. There is a new tunneled line that will be coming out which will be better suited for Brocs needs. We are hoping that this will be available soon as its still in the testing phases. Its very encouraging to know that his team is always looking for more ways to keep Broc safe.

We got home very late last night so sorry for not updating. Today Broc went for a CBC and it is very concerning. His ped has the numbers and for now we are hoping that its his body still trying to cope with the infection. We will be doing another CBC tom and hopefully those numbers will look much better. Broc has periods where he has energy and then times where he just lays on the couch.

This week is supposed to be our isolation week before surgery next week. Due to us being in the hospital we unfortunately have somethings that have to be done.

Thank you to our friends that came to visit us. If the plan changes at all I will update as soon as I can.

Thank you for your love,prayers ans support.