If he is aspirating on liquids which I don't he is then he will go to the O.R. and surgically fix his cleft. If he is not aspirating then he wants the "wait and see" approach. I am totally not on board with that. I am not watching my child choke on nothing all the time. Moma Bear will come out if we have no plans after the swallow study.
If that is the case then we may have to go back to Cincy for a plan as they are the ones that diagnosed him with the laryngeal cleft.
Overall Broc has been doing really well. We have not had any high fevers which means there have been no hospital admits which means lots of family time at home.
Homeschooling is going great. We have a couple field trips lined up for the boys too.
Broc is also starting Physical Therapy too, so with that and Occupational Therapy and his home therapy schedule we should be able to manage his sensory and motor skills pretty well.
The weather has been cool enough lately that they can ride their bikes and spend more time outside. Unfortunately that does leave Broc very tired the next day but to him and us its worth it. To see him having fun and doing things with his brother is PRICELESS!!
Our next trip will be for Marks MRI's to see how his Chiari is doing.
Thank you for all your love, prayers and support.
Our next swallow study is in November--William tends to swallow fine at first but then gets all uncoordinated and aspirates. He hated the barium drink last time, though, and was mad he had to drink it :\
ReplyDeleteI hope the swallow study leads to some plans other than "wait and see". It is easy for the doctors to say "wait and see"--they aren't the ones trying to keep everyone together at home!
Thanks. We actually cancelled his swallow study as we called Cincy and they agreed to do the surgical repair for Broc.
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