Urology Update and ER surgery.

Two weeks ago Broc was scheduled for his urology studies. We had to be there bright and early in the morning so we stayed the night before. Broc handled his testing like a champ. There were wires and tubes where no one wants wires and tubes but he practiced his breathing techniques he was shown. We are so proud of him especially since about 10 minutes into the test they realized Broc is a cardiac kiddo and needs to have a pre-med before any invasive procedure like that.

While he was lying on the table playing the ipad I had to run downstairs to the pharmacy to get his antibiotic that cardiology ordered.

During the test I learned a lot about Broc and his body. He had the whole urology team talking about him. Normal pressures in your bladder are 8-10 and Brocs were 37-91!!! Extremely high. We also learnt that his bladder is really small and he is able to hold only half the amount he is supposed to hold.

We were very happy we were not looking at a muscle tone issue as there is not really much that can be done for that. Unfortunately it confirmed our suspicions and we were told that Broc will need the Tethered Cord Release Surgery. He will be having the surgery on April 1. We are hoping that the surgery will help him.

Broc will not be leaving the house after the March 25. We will be starting breathing treatments 3 days prior to help his lungs after surgery.

While we were at our urology appointment Brocs central line broke. We called down to IR and thankfully we were already at the hospital so they were able to get Broc onto the OR schedule in a couple hours.

Everything went very smoothly and they were able to place a brand new line. They also placed a new GJ tube at the same time as he was due for a new one.

This past weekend we were able to attend the Imitate Jehovah Assembly. We were all looking forward to it and really hoping we could all make it. Broc was not well with lots of pain and nausea but we took his chair to make him as comfortable as possible. He really enjoyed himself and of course loved walking over the bridge to look at the koi fish. He loved seeing all his friends and of course the singing. Brocs loves to sing.

Unfortunately Brocs belly got worse on Sunday morning early and we ended up in the ER last night. His KUB (x-ray of the belly) showed that he has an ileus with either an infection or really bad virus. We are waiting for the blood cultures to come back. We are very happy that we can give him comfort care at home with IV fluids and the medications and treatments that he needs.

Thank you for all your loving support.