A little more clarification.

We spoke to Dr Nalepa over the weekend and he explained the bone marrow biopsy results much clearer to us. The fact that Broc does produce less blood cells than other children his age is the reason he is having lower counts. It is called hypocellular bone marrow. The next test that will be done will be done is a screening for test for all kids that have hypocellular bone marrow. Unfortunately with Brocs continual low counts we have to keep him away from crowded places and enclosed spaces with lots of people. Especially with the flu season approaching us fast. A simple flu or cold could mean a hospital stay for Broc.

Broc is still having a lot of GI issues. We are trying to increase his feeds but to no avail. We are getting better with his TPN schedule. We are also able to leave the house more as I'm more comfortable changing his TPN to IV fluids on the go.

We have good news. Broc has completed Science for Second Grade. He is so happy. He will now start Science for Third Grade too. We are hoping that he is able to do this with most of his subjects so he will catch up to the year he was in in school.

We realize that many people think that just because Broc is out of the house, running around or just being himself means that he is well and cured. The only time he will be cured or well is when Jehovah makes him well. Until then he struggles through every day. Some days are better than others. Some days he can walk and other days he needs his wheels. He is dependent on IV nutrition to keep him alive. He has pain daily which he has learned to deal with for the most part. Some days it gets too much for him.He gets tired really easily too. His Drs are really puzzled and I'm sure you all have the same questions we do as parents. Why can he not eat food? Why does it make him sick? His Drs have been in contact with another Childrens Hospital and they too have no idea. We have the option to put Broc through more invasive testing which may or may not give us an answer and we have decided not to do that at this time. In his short life of 8 years he has endured more than a typical adult goes through in a life time.

Here is a little collage that popped up on my screen from 7 years ago. How I wish they were this small again. It seemed as if life was so simple then.

Thank you for all your continued love , prayers and support.