A new formula

This past week Broc started a new formula. I have been doing some research and looking for a formula that was free of most allergens. I had also spoken to a couple moms to see what there kids were taking. I did some research and found one that we are really hoping will work for him.

Broc has not really gained any weight since January. Maybe a couple ounces here and there. We are hoping that the new formula will help him gain weight and he will be able to tolerate it better.

Since Broc is still struggling with pseudo obstructions we have decided that the food trials that we were doing for him will come to an end. It seemed like everytime we tried to feed him it ended up causing more pain and discomfort than joy for him. His system just cannot digest food. We are not sure why but it just doesn't want to do the work its supposed to do.Unfortunately he is only 8 years old and will still take food without us knowing and does end up sick.

We are doing weekly weights on him to track his weight gain. We have an app with his GI surgeon in August in the hopes that he will be able to offer us something else.

Broc is still dealing with his low WBC and Neutrophil counts. It continues to make going places a little challenging for us. We are trying to protect him as well as have fun at the same time. Hopefully seeing the Bone Marrow Failure Specialist this week will give us some more options. I did listen to a Neutropenia Conference over the weekend and learned a lot about the disease. We still have a lot to learn. Hopefully once we have a name to his neutropenia we will be able to treat him.

We want to thank everyone that supported our fundraiser we had. We were totally blown away by your support. If you bought a t-shirt it should be arriving in a week or two. If you would still like to make a donation towards Brocs wheel chair you can do so through Paypal. This is the address : sambuka18@yahoo.com

Thank you again for all the love,support and prayers.