Monday, May 4, 2015

What a week.

Broc was discharged from the hospital on Tuesday afternoon. Finally he was able to tolerate his feeds again and feel a little better.He has still not gained all his energy back and his very tired at times. Even a short run outside with his brother is tiring him out like crazy. He is getting frustrated cause he cannot keep up, he has to keep taking breaks and Lil Mark is getting upset cause his brother cannot play with him. Man .... tying to keep everyone happy and explain all the reasons why is really tiring in itself.

Brocs count continue to stay low so it will be another week of staying at home. We are trying to keep up with his school work and give his body the rest it needs to recover. We have been in contact with some more specialists to see if they can help us. We are still waiting to hear from them.

We really appreciate everyones help while I was at the hospital with Broc. Unfortunately we never have a lot of warning before something like this hits him and we need to head to the hospital. Hopefully with our new plan we will be able to stay home from the hospital more often.

He has a wonderful nurse that comes to the house once a week to change his dressing and play with him when he has the time. Broc loves playing games with Jeremy. His Uncle also came to visit him at home and spend some time playing with him too.

Unfortunately Broc does not have the energy of a regular 7 year old so sitting down playing games with him is what he loves to do.


Broc doing sand art at the hospital with Mike. That is the Wii station he played while he was passing the time too.


Here is his dinosaur sand art that he did. 



Uncle Troy playing games with Broc


Both boys have learnt to tie shoe laces now but Broc was going a little too slow for Mark so he figured he would help. 

Broc will be having a cardio check-up on the 18 May so we can see how his heart function is doing.

Thank you for all the prayers and loving support for our family

1 comment:

  1. Poor guy! It has to be so frustrating for him to not be able to be as active as he wants to be. Praying you can get some better answers for him soon and that his numbers will rebound so he can gain his energy back.

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