GI update

Broc saw Dr Zaidi yesterday. He was not happy with the weight he has lost. I was expecting to talk about his reflux or the fact that we finally treated his campylobacter. But no he comes in and says what are we doing to put weight on this boy?

I was really shocked and thought that him loosing weight was not such an issue. He is lighter for me to carry when I still have to pick him up. Anyway I explained that I thought he lost weight due to having this bug living in him for so long. Dr Moustafa thinks it's because of the ADHD meds.

I know ADHD meds can decrease your appetite but Brocs appetite was going long before he started them. He used to be a big eater and at one stage they were thinking of cutting down on what he ate. He finished the course of Cipro on Sunday and seems to be much better. He has complained of very little stomach pain and seems to be eating. He is still not eating lunch at school only drinking. I am not sure why this is.

Dr Zaidi said that we need to give him supplements and extra calories. He gave me some samples of bright beginnings which is a soy based pediasure and Broc told him flat out " I hope you don't expect me to drink that , it looks gross!"
So I asked if we could try cyprohetadine which is an appetite stimulant. Marks takes it and now proudly weighs more than his brother. He has longed to weigh more than Broc as he thinks if you are older then you should be taller and weigh more too. It has really helped Mark gain some weight so we are hoping it does the same for Broc. Although  Broc does burn more calories due to his heart working harder.

The only down side to cyprohetadine is that it can make you drowsy. Broc has just been prescribed clonodine to help him sleep as the melatonin was no longer helping him. So now we have to play the see saw game and find a happy medium between the amount of clonodine and cyprohetadine. We are hoping that maybe he won't need the clonodine and the cyprohetadine will do the job of both of them.

Dr Zaidi is also very eager to see what Dr Collins has to say about Broc possibly having EDS Type 3 as it effects all organs in the body.

So far Broc has not had any bad effects from the Cipro but as we know C diff can spring its ugly head at anytime.

It seems as though we have found the right recipe of meds for his reflux for now as we are trying desperately to avoid the Nissen surgery at all costs.

His anxiety seems to be getting better too. This new med really seems to be helping him. He was actually able to sit through Cloudy with a Chance of Meatballs 2 without screaming or leaving. We did have ear plugs and sunglasses on him which helped too. It's really crazy to think that our kids would need to have all these things just to watch a kids movie. We don't take anything for granted any more.