Dr T said that Broc can keep his ear tubes for at least another year. Wonderful news as we wanted him to have a surgery free year.
The draining is just something Brocs ears will do so nothing serious to worry about.
Onto Dr A , Brocs ID Dr. He has changed his asthma meds to something less stronger as the stronger meds aren't making any difference for him. We have learned that treatment will not benefit Broc as he is not dealing with many bacterial infections but viral ones. The risks far outweigh the benefits. It is too risky for him. Another option for Broc is to keep him on antibiotics but we know that wont work either due to his risk of c-diff infections.
We are left with dealing with each viral illness as best we can with breathing treatments and comfort care. We were offered another referral for another immunologist but we declined that too. We have realized that no-one will figure out why Broc gets so many infections. We have been to many Drs and specialists and no- one has any answers.
We have decided not to treat the campylobacter as it would be treated with Clindamycin and that is one of the ABX that put Broc in the hospital with c-diff.
We will wait for the day when all of this will be gone. Until then we enjoy each and every day we have with our family.
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