A little scare

About an hour after we got home Broc spiked a fever of 103F. We called the drs and they said to bring him into the ER.They were not sure if it was an infection or a reaction to his flu shot that he got. Anyway he was admitted to the hospital and put on IV fluids and antibiotics.He stayed in the hospital until Thursday night and then we came home.

He is doing much better now.Still running a low fever but that is to be expected.His tummy is also really upset due to the antibiotics.His tummy does not like antibiotics.

Broc will be going back to see the card in 3 months time for a follow up visit.

Thank you for all the kinds words of support and prayers that were offered in our behalf.

Day of surgery

Broc was really good this morning.He did really well with letting all the drs and nurses listen and prod him.

He was almost alseep when they took him back.I was really worried about that cause I was scared that he would scream when we left him but with the meds he was almost asleep.

He has been in for about an hour so far.

I will keep you updated as soon as we get any news.
He was in surgery for 3 hours and then 45 min for recovery.

He was really fiesty when he came out of recovery so they had to sedate him as he had to lay still for 4 hours and not move his legs otherwise his ateries could come open again.He does not like his IV's or his monitors.

He is playing with his monster trucks right now and his big doggie that Aunt Monica and her family got him.
He had a chest x-ray this afternoon and is having an echo tom before we leave to make sure his heart is doing okay.

we are hoping for a good night.
Till tom.good night.

The Day before

All the bags are packed and we are ready to go. Mom and dad are a bundle of nerves.Broc has a really good idea of what is going to happen.He knows he is going to sleep and then the dr with a mask will make a tiny, tiny hole in his groin and then they will fix his heart.I think the more he talks about it the more comfortable he gets.He is telling us not to worry and he says that he will see us when he wakes up.He is only 3 and he is being so mature about it all. We are so proud of him.He is such a brave little boy.

We have to be at the hospital at 6.50am to check in and his surgery will be around 8am.They say it will be between 2-4 hours for the heart and then another 30min for the Upper GI scope.

I will keep everyone up to date as much as we can.Love you all and thank you for your support.

2 Days to Go.......

Broc had another great night.He is asking a lot of questions today. Grandma and Grandpa came over last night with remote controlled cars for the boys.Thank you mom and dad.That was really kind of you.They were so excited.Mark said he is taking his with him to the hospital. Mark said this morning that it was so thoughtful of grandma and grandpa to give us these cars.

We are busy with laundry and then will start to pack the bags. As parents we are still trying to wrap our heads around this.He looks perfectly healthy on the outside but we know that inside he is really sick. We are really scared and nervous for him People really don't understand what we are going through and its really difficult to explain at the same time. We appreciate all the support you have all given us.It really helps to know that we are not going through this alone.We know to that Jehovah is helping us too and giving us the strength to get through each day.

Good night.

Broc had a great night last night.Maybe his reflux meds are helping him after all.

Only 2 days to go.........

Call from the dr today...

We got the call from the GI Dr today to say that Broc is having his Upper GI procedure done on the same day as his cardiac cath.The cardiac dr said that if all goes well then he can have the scope done after the cath.

He is not sleeping well at night lately.We are not sure if he is having pain or his reflux is causing him some problems.But it makes for a very tired mommy and daddy.

We want to thank everyone for all there support and prayers they have given us.It really is a very difficult time for us.We want it to be over so he can carry on being the little bulldozer he is.

It has been very difficult trying to keep him from wrestling with his brother or running outside.

Only 6 more days to go........

Trip to the G.I. Dr

Broc's reflux is getting so bad that something needs to be done.So we called the G.I. Dr asked him what we should do.We explained that he was having a heart procedure done in a week or so and that he needed something to help him feel better.

Broc and I took the long 3.5 hour trip to Riley Hospital to see dr. He listened to all of Broc's history and said that he should have outgrown reflux by now if he was, but some kids never outgrow it. He has increased his meds and given him another one too.He also suggested a barium study and a upper GI scope. He said that he would speak to the cardiac surgeon and see if they can do the scope while he is under for the cath. I was really happy with that as the less amount of times that he has to go under the better.

We did the scope the following week and he was such a champ.I was so proud of him.He had not eaten since the night before.10am came and went and he was getting really cranky.We went in shortly after that.

They radiologist said to him that he had a milk shake for him to drink.I think Broc was so happy that someone was giving him a drink that he accepted.He drank everytime they told him to.I was so proud of him.

After the test the radiologist said that all his anotomy inside looked really good and that he could not see anything wrong.

Off to buy McDonalds chicken nuggets his favorite.

Call from cardiac surgeon

We got the call to say that thankfully Broc is still a candidate for a cardiac cath.His card in South Bend was not sure but the cards at Riley think they can definitely help him without OHS. We were so thankful to hear that news.Although we know there are still many risks that do go along with that too.

They did however tell us that this procedure could make his leakage worse and then we would be looking at OHS sooner than we want.

He did say that Broc would have to spend the night as we live so far away from the hospital and he would like to monitor him for a while.

Although a cardiac cath is not OHS , for us it is still really scary.There are many complications that can happen or they could balloon the valve too much and therefore blow it apart.It is a very delicate procedure.We are hoping for the best.We love you Broc.