Tuesday, October 21, 2014

A GREAT DAY!!!

Yesterday was  great day!! Our Buddy went to school after 8 weeks of recovery from his brain surgery. I was nervous sending him. He was nervous not knowing where to go and what to do. Markie took great care of him like any big brother would and walked him to his classroom. Truly he is the best big brother. Love him so much. He was so happy to climb on the bus with his Buddy yesterday.





It was a very grey morning but there was a  rainbow and the sun came out later.

We also got the most wonderful news yesterday. Remember in my last post I wrote about Broc getting immune testing well one of his numbers did come back low. Don't get me wrong the only reason we wanted his numbers to come back low was so that insurance would cover the treatment he needs. The fact that his numbers did come back low means that his immune system is not doing well. He has earned himself another diagnosis called CVID (Common Variable Immune Deficiency) We asked Dr Harris why his numbers have never been low before. He said that they have been low but not low enough for ins to cover treatment. His body is so tired of trying to keep it healthy and fighting viruses and bacteria all the time that its finally getting worn out. As soon as all the paperwork gets sorted out we will start his treatment.

Dr Harris says that we should start to see an improvement within 3-4 months. If not then we know that it is not working and we will move onto the next step. Not quite sure what that will be.

For now we have won half the battle, getting it covered. We were wondering how we could raise the money to pay for it on our own. Thankfully we don't have to. We are really looking forward to Brocs quality of life to change for the better.

We are still waiting to hear when his leg procedure will be scheduled.

Thank you to everyone for all your love and support and especially to our God Jehovah. We thank you everyday for the comfort and strength you give us.

3 comments:

  1. Your boys are so sweet together :) Mine fight fiercely but they also love fiercely and those moments of pure joy at just being together are a wonderful sight!

    I'm so glad Broc will be getting his treatment! It is such a surreal thing, to celebrate "bad" news, but not getting that bad news would be worse because then there would be nothing to treat and you continue searching for answers for that piece of the puzzle.

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  2. Thanks Piper you are so right. We even took cupcakes to the peds clinic so everyone could celebrate with us. We have been with them since the beginning so they have all been through it with us.

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