Illness with no name

 Broc has not been well since coming home the beginning of March. We took him to the ER 2 weeks ago with severe belly pain and vomiting and low grade fever. He was dx with gastritis on CT scan. We came home on IV abx for 48 hours incase his blood cultures grew something. Thankfully they didn’t. 

Fast forward to this past week he still has low grade fevers. On Tuesday his migraines increased as well as his belly pain. His temp also started increasing on Monday night into Tuesday. He spiked a very high fever Tuesday. Well past his cut off for his protocol. We were convinced he has a blood infection or at least a line infection with how sick he was. 

Unfortunately after all the testing came back negative, viral and bacterial and he was done with his 48hours of IV abx and fever free for 24hours, they decided it was best to send him home. We do have one more test pending that takes a week. If this test is abnormal that would be helpful. 

Thank you for all your continued love and support 

🐸🐸🐸🐸

Broc Update

After spending almost all month in the hospital and not being able to manage his pain very well, we made a decision. This was not made lightly but one we knew we would have to make eventually. As a family we have discussed this over the last couple of years as Broc’s health has slowly declined. We placed Broc with hospice/ concurrent care yesterday. We are really hoping this brings him better pain relief. He isn’t absorbing the pain meds through his J tube anymore. 

It doesn’t mean that he’s at the end of his life, it just gives him the ability to have iv pain meds and be as comfortable as possible while still getting his IV nutrition at home. If he gets sick or needs medical attention we will still take him to the hospital to get treatment.

We are hoping this will allow his body to not be fighting pain all the time so that he can start to gain some weight and strength. Because of all the pain he is in bed most days and has lost almost all his muscle mass which is causing other issues for him. 

We long for the day that he will be healthy and happy again. Until then we will keep him as comfortable as we can. He still has many things on his bucket list. 🐸🐸🐸🐸