Life at home

Brocsbuddies 

We are running a fundraiser too if you would like to purchase a Brocsbuddies Hoodie. Click on Brocsbuddies above ⬆️.

Since we left the hospital life has been pretty busy. Broc has needed an increase in his IV fluids and we have switched some more meds to IV that can be added to his TPN. He’s struggling with the volume of all his meds that have to go into his j tube. 

Unfortunately he has been diagnosed with Long Haul Covid or Long Covid. That means that he is sick or having symptoms 24/7. We have added another pain med to help keep him as comfortable as possible. With his previous immune cycles he would get a day or too break from symptoms but now he doesn’t. 

His immunology team are drawing more labs on Monday to see if they can figure anything else out. We have already tried a 5 day course of low dose steroids but that didn’t do anything. He’s also having increased blood pressures so we are trying to figure that out too. 

Thank you for all your love and support. 🐸🐸🐸🐸

Covid Day 8

 It has been a rough week for Broc and I. Covid is so weird. Every day you have a different symptom or you loose a symptom and then it comes back a couple days later. 

It has really hit Broc’s bone marrow for a loop. His WBC is yet to reach 2.0. His Drs feel he will be more comfortable at home. As long as his ANC remains above 500 we can leave tomorrow. We have been given extra iv fluids that we will replace over night for him. This will help with fluid losses as well as the effects from the antibiotics. 

Thank you to everyone that has called, texted or FaceTimed. We really appreciate all the love and prayers. 

🐸🐸🐸🐸