Day 3&4
Broc’s team have felt that a Tpn window will benefit his liver. Yesterday we have him a window for 2 hours. During that window they checked his sugars to make sure they didn’t drop. He also got Pedialyte during that window to keep him stable. He did very well on his new plan.
Unfortunately today is the start of his immune cycle so he’s not feeling the best either. Lots of belly pain and joint/ body pain. It hits him every Thursday. Friday-Sunday are rough too. By Monday he starts to feel a bit better. Tuesday is a good day and Wednesday is so-so because it’s the end of his episode but the beginning of the next one.
It’s crazy! No-one can understand it. No-one can stop it. It’s hard for anyone to grasp.
His body never gets a break!
The Tpn has really helped him though. We don’t have to worry about him not getting calories or struggling to gain weight with every cycle because Tpn is doing all the work for his body.
It’s a necessary evil for Broc and the disease he has.
If everything goes smoothly today, sometime tomorrow we will be back on the road home.
We never hold our breathe anymore because Broc is so unpredictable. It’s not about NOT being positive it’s about BEING realistic. Because thats all we can be. Thank you for all the love and prayers.
🐸🐸🐸🐸
