Saturday, October 21, 2017

My recovery

I cannot believe it's been over a month since I have posted on here. Life has just been crazy.  I'm trying to do as much as I can without hurting myself as well as resting as much as I can. I had this same surgery 17 years ago and boy have things changed.  It's true when they say as you get older you take longer to recover.  Granted I didn't have children to take care of then let a lone one with special needs.
This was cast number 2.


This was cast number 3.

I now have a walking boot on but still am not allowed to bear any weight on it. Talk about frustrating but I'm being as patient as I can. My boys have been amazing and really stepping up to help me especially Lil Mark. He is helping me as well as helping me take care of Broc.



My hubby has been amazing. Working extremely long hours and sometimes weekends too he still comes home to cook dinner, help with laundry, help with Brocs nighttime care and take care of me too.

Thank you to all the wonderful friends who have helped with taking us to Drs and therapy appointments,  helped with house cleaning , cooking meals,  taking care of me or the boys. All the many texts , phone calls , visits and cards are truly appreciated.

It's not so much my surgery that is extending my recovery but the other diseases that I deal with on a daily basis. I know that soon I will be back on 2 feet again and I cannot wait, but until then I will be patient.

Thank you again for all the love,support and prayers from around the world.

Friday, September 15, 2017

Immunology app and catch up

Broc is still having his eye tics and head movements. We don't have any reasons as to why he has them.
His ankle is sprained. We saw his new Ortho on Wednesday and he now has to wear an ankle brace for 3 weeks to help it heal properly.
We have managed to stay out of the hospital which is wonderful.

We saw his immunologist on Tuesday. It was a great appointment.  Dr N spent a full hour talking to us and answering all our questions. They drew a slew of labs too. Hoping to get the results soon.
He still doesn't have any answers as to why his counts are always low. When whole genome testing is available he would like Broc to get that to see if we can get any more clues.

We are still waiting on a plan from his team.  We have a verbal one but nothing in writing yet.

We had a great time at the Aquarium on Saturday with a lovely family. As you can see Lil Mark is not into taking pics.


I had my surgery yesterday. Everything went well but recovery will be a long one. Thank you to all our friends for helping.
This is the new member of our family. His name is Jack. He is a leopard gecko.