Day of surgery

Well today has been a very stressful day.Broc was very anxious about the day and kept on asking if he can please go home.I think he is really feeling the stress of everything that is going on.
We have just had an update to say that he is






doing well.He went under anesthesia very well.He has a few lines in him for IV's and other monitors. It will take an hour for them to get him on the bypass machine and then the dr will start the repair.









The dr has said that he is 90% sure that he can just repair his valve. We have discovered that there is narrowing at the base of the aortic valve and they will have to correct that by cutting it and then putting a patch over it.




His mean pressure is up to 90mm for a mean gradient and the dr is hoping to get it down to 30mm after the repair.

Once he has done the repair he will he will do another eacho on him where they put a camera down his throat and they can see his heart through it. Once they are happy with the results of the echo then they will close him up.

So it takes an hour to geet him on the bypass machine and then another 3-4 hours for the surgery and then once he is done it will take another hour to get him off bypass machine and then another hour to settle him in the ICU.

We are all sitting chatting and having fun entertaining Mark. We have a lot of support and love from all the friends of the congregation.

3 More days till surgery.

Broc is getting more and more tired by the day.He has times where he is rearing to go and then other times where he just lays around.The times where he lays around are getting more than the times where he is on the go.If you know Broc he is not the same little boy. He is really getting clingy and over affectionate to the point where it is almost suffocating me.He does not want to leave my site.He wants to be on me 24/7. I feel so badly for him and want to take it all away.

I wish we could postpone this till a later date when he is old enough to understand fully what is happening.But we know that for him to live that is not possible. Over the past few days he has had times where he will have no color in his face and look very pale and then you realize that he needs to have this surgery now more than ever.

I am taking photos and video of them together and trying to remember little moments that him and his brother have together.

My mom is here and has been so wonderful with helping us getting the house organized and laundry ready to be packed.Tomorrow will be a day full of packing suitcases and getting things packed for our long journey.

We have bought old man pj's for Broc with the button down shirts so that he will be more comfortable after his surgery.He will not be allowed to lift his arms up for 4 weeks for his chest bone to heal.

Broc is still taking breathing treatments twice a day,iron supplements 3 times a day which he hates the taste of poor guy and then of course the EPO shots.He has his last shot tom morning and then he will have them in the hospital too.It is so sad that we have to put him through all this preparation but we know that it will help him get through his surgery and hopefully have less complications. He is such a brave little boy and we are so proud of him.