Wednesday, October 6, 2010

Call from cardiac surgeon



We got the call to say that thankfully Broc is still a candidate for a cardiac cath.His card in South Bend was not sure but the cards at Riley think they can definitely help him without OHS. We were so thankful to hear that news.Although we know there are still many risks that do go along with that too.

They did however tell us that this procedure could make his leakage worse and then we would be looking at OHS sooner than we want.

He did say that Broc would have to spend the night as we live so far away from the hospital and he would like to monitor him for a while.

Although a cardiac cath is not OHS , for us it is still really scary.There are many complications that can happen or they could balloon the valve too much and therefore blow it apart.It is a very delicate procedure.We are hoping for the best.We love you Broc.

Tuesday, September 28, 2010

Broc's Heart check-up - Sep 2010

Once again we are walking down the hallway and Broc says mommy are we going to see my heart again on the TV.He is very excited and has no clue what I am thinking.We get through all his vitals which are good to me anyway and then in comes the card.He says Broc looks really good beside the pneumonia that he was just had again this year.I tell him that his reflux is really bad and that his fevers are back again.I also told him that he has had strep throat 7 times this year.He says despite all of that, Broc looks really good but we will wait to see what the echo says.The tech does the echo and I once again ask questions.This time she answers a little but still does not tell me what his pressures are.Broc is only concerned with the Toy story movie he is watching and nothing else.

In walks the card and sits down to view Broc's echo.He is very silent and keeps rewinding to watch over and over.I got a strange feeling that something was not right.He tells me to sit down.Then I know its bad.He says that his gradient pressure is at 48.9 and climbing to 50 and that the peak is at 92.I know that any number higher than 45 for a mean gradient is a bad sign.
He then tells me that Broc is looking at open heart surgery as his valve is leaking too much.Well my heart sank and I tried to hold back the tears.I said excuse me but I knew something was up and everyone was telling me to think positively.I really tried but in the back of your mind you know there can be bad news.I asked for a glass of water and a tissue.I really tried to hold back the tears but I was thinking of all Broc has been through.

The card says that he will send his reports and findings to Riley in the next day or 2 and we have to wait for his call. That day I cried on and off all day.I just wanted time to stand still and it all to be a terrible nightmare.