January update

So much is happening. I may just do monthly updates unless something urgent comes up.
I'm having lots of issues myself medically and seeing various specialists so I can get myself fixed up soon. Unfortunately EDS is a nasty connective tissue disease that  causes many issues with various parts of your body such a joints, ligaments and tendons .

Broc likes to keep us on our toes and needed a new central line too. Unfortunately with wear and tear sometimes these lines breakdown. Thankfully his Riley team was able to get us in the next day and get it replaced. Brocs body doesn't like any trauma and responds with elevated counts and fevers after any procedure which takes him for a couple days. We met our wonderful friends while waiting for Broc. Always a lovely surprise to do  into these 2 cuties .

We have had feet of snow upon feet of snow. The boys had a great time outside last week. 

Broc is only line free for an hour each day. He loves that hour. Tearing around the house like a regular kid.  Thankfully his health has been pretty good and we have still managed to avoid the flu. I'm hoping to get much needed answers this week for myself .

Thank you for everyone's support, love and prayers.