On another note Broc has started choking again. We are very sad about that because it means his laryngeal cleft is weakening agsin. We have contacted Cincy and they will discuss Brocs case in the Aero meeting on Wed and let us know what there thoughts are. Surgery is not a good option for Broc but they can inject a filler to help close the cleft. It is likely Broc will go to the OR sometime to be scoped to see what is going on.
His iron infusions every 8 weeks really seem to be helping with keeping his red blood counts in a stable range. IVIG every 4 weeks is still helping with keeping his continuous high fevers at bay. He is only having them now when he is ill and not when he is having an auto immune response.
Homeschool is going well for us. We attended our first homeschool trip for he school year on Friday. It has been very difficult for me to get out with the boys but we made it. Unfortunately I did fall going up some stairs. My coordination skills are not very good. We get to see some amazing animals and amphibians.
My recovery, well it's going slow. I'm still not able to bear weight on my foot. My foot/ankle continues to swell even though I am wearing a compression stocking and still taking strong anti inflammatory medication. I am seeing my Dr on Wednesday so really hoping for some answers.
Thank you again for all the help we have received during my ever long recovery. Thank you too for the friends that came to visit us at the hospital. It makes the long days much shorter.
Thank you for everyone's continued love,prayers and support.
