Immunology app and catch up

Broc is still having his eye tics and head movements. We don't have any reasons as to why he has them.
His ankle is sprained. We saw his new Ortho on Wednesday and he now has to wear an ankle brace for 3 weeks to help it heal properly.
We have managed to stay out of the hospital which is wonderful.

We saw his immunologist on Tuesday. It was a great appointment.  Dr N spent a full hour talking to us and answering all our questions. They drew a slew of labs too. Hoping to get the results soon.
He still doesn't have any answers as to why his counts are always low. When whole genome testing is available he would like Broc to get that to see if we can get any more clues.

We are still waiting on a plan from his team.  We have a verbal one but nothing in writing yet.

We had a great time at the Aquarium on Saturday with a lovely family. As you can see Lil Mark is not into taking pics.


I had my surgery yesterday. Everything went well but recovery will be a long one. Thank you to all our friends for helping.

This is the new member of our family. His name is Jack. He is a leopard gecko.

Home

Since we have been home from our last hospital stay Broc has been dealing with a couple things. A pain on the right side of his abdomen that we have yet to figure out. Gallbladder has been ruled out thankfully. Right ankle injury that he will be seeing an ortho for in a couple weeks and some new tics/ movements which we are still trying to figure out what caused them. We are thinking it could be due to all the stress his body has been through the last month and hopefully it will go away or it could be something more. I'm guessing he thinks I need another challenge to figure out.

We have also started school for this year. We are using books, lots of experiments and lots of hands on learning and documentaries about animals. The boys will also be doing lots of animal projects and learning about the world around us.Computer classes were not working out for us especially when you need to be on wifi for schooling. At least books can be taken anywhere with you.

We wanted to get a jump start on school as I'm not sure how much schooling I will be doing once I have my surgery. That is scheduled for Sep 14th. My recovery will be about a month but hoping that I will be able to drive after a couple weeks. Thank you to all the friends who have offered to help with watching Lil Mark, bringing us meals,giving us rides and of course all the support and prayers.  

The boys also received a wonderful gift from our dear friends in Las Vegas. They were so tickled once they opened their paintings. It truly is wonderful to see all the extended family the boys have all over the world. They have already found a space in their rooms for them.

Thank you for all the love and support for our family.

Day 6 & 7 at Riley

Broc was starting to feel better with lower fevers. With feeling better came lots of lego building, crafts and playing basketball with one of his favorite nurses.

Of course everyone has to have a bath and get your hair washed to get clean. 

Thank you to everyone that helped with looking after Lil Mark and provided meals for my boys. We are really hoping that Broc will stay healthy now so we can stay home and I can start preparing for my surgery. His team is also working on a plan so that the local hospital can take care of Broc if things are not too serious, so we can be closer to home.