Day 1-5 at Riley

On Monday Broc and I came down to Riley for a new central line. Everything went we!l and we were home Monday evening. He had a sore throat but we thought it was from the anesthesia. Tuesday we had routine labs done as we normally do. To our surprise his WBC was extremely high. I called his ped and he had us bring him to the ER. At the ER he had a fever. Blood cultures were drawn and a call was made to his team. We

Thank you to the friends that came to visit us in the ER. We waited for the ambulance. Broc was still pretty stable once we got here but the following day took a turn. He started spiking fevers and really not feeling well.

His team have been watching him closely here. He has developed lots of congestion and feels yucky overall. All his blood cultures are still negative but we have new ones growing since he spiked fevers after being here for 24hours.

The plan for now is to watch his counts. Too high and we know there's a problem. Too low and there's a problem. Broc has a very small window where his counts are good and won't effect him negatively. It has taken years to teach his team but they know the still now which helps immensely.

We had a visit from Quiggley yesterday. Broc loves the therapy dogs.

Thank you to everyone for all the prayers,love and support.

Day 7 & 8 at Riley

Broc is doing so much better. Yesterday was all about making sand bottles and building legos. I was a little hesitant to post yesterday because his labs were a little high and everyone was concerned but today they are trending down which is great.

Our Buddy is truly a miracle. He has come so close, twice in a matter of weeks but he defies all the odds and teaches all these med students what it's like to take care of a medically complex kiddo and how unpredictable they can be. Everyone is learning how fast our Buddy can go from being well to extremely ill in a matter of hours.

On Saturday Mark and Lil Mark drove down so we could attend a friends wedding. Our team assured us that Broc will be fine and that we need to go have some fun. We did have a couple come to the hospital to sit with Broc until he fell asleep.

We are hoping to stay home for a while now so that I can focus on the house before my surgery. Thank you for all the cards, love and prayers for our family.

Day 5 at Riley

Broc is still doing the same today. Still battling some pain. He went for an ultra sound on his gallbladder this morning to rule that out.
If you would like to send him an e-card here is the link.

https://www.rileychildrens.org/form/patient-postcard/

We have stuck some on his doors in his room. He loves reading them and seeing all the cool pics on them. We are still being patient and waiting for him to recover.

He also had a school lesson today and learnt about the life cycle of butterflies.

Thank you again for all the prayers.

Day 4 at Riley

Today was a rough pain day. We tried ice chips yesterday and he was only able to have 2 before he had severe pain. Today he was begging for sherbet. He tried 3 small spoons and the pain hit again. He has really regretted trying anything. He was very quiet today. No lego building like he did yesterday. He actually slept for 2.5 hours. Anyone that knows Broc, he never takes a nap during the day. He still has a lot of healing snd recovering to do.

His counts are still dropping slowly. We are hoping that they stabilize eventually. His team is so scared to send him home and he's not ready then falls ill again a week later. We have an awesome team with us. They are looking at all avenues and making the best decisions for Broc. Our biggest concern is that when he does get this ill it happens extremely fast and our local hospital doesn't have transport for us. Last Saturday we waited for 7 hours for an ambulance. We have a lot of decisions to make with the help of his team.

Thank you for the help with Lil Mark and meals for my boys. I know it's really difficult for Daddy to work a full day and then come home and take care of Mark, make meals and laundry etc. We really appreciate the extra meals and help.

Thank you for all the prayers and loves.