The last 2 weeks of school the boys have had a weird virus with fevers on and off. They missed a few days of school. One day I was so sick I couldn't get out of bed so they stayed home too. Finally it seems like they are on the mend. I am still finding my voice and getting my energy back. Hopefully this not going to be a pattern of our Winter , the boys have done really well this year and we attribute that to all the Vit D they got for a whole month last year in South Africa.
I wasn't feeling the greatest over the weekend but the boys wanted to see the dinosaur movie so badly. It was a cute movie and the boys we glued from beginning to end. It was also a perfect length for little boys who cannot sit still for very long.
We are still dealing with Brocs reflux so Dr Turk is having us see his colleague who has studied these issue with kids at Cincinatti Children's. We will have a fresh set of eyes on Broc and hopefully we can figure out a solution for him.
We are still trying to get him to drink the soy formula to get more calories in him. I tried to have him go gluten free but he was so frustrated with not being able to eat things he liked that he just refused to eat at all. Mark,myself and his dr decided that was not the best option for him so we will just limit gluten intake. It also never took the tummy pain away either. Not sure if we will ever find a solution for his tummy pain.
On a happy note we have a snow party planned for the boys on Friday. A pity the rain came and melted all the snow. Oh well I think they will have fun with their friends whatever they do. I have lots of yummy treats planned and we are also setting up the jumping castle in the basement. We are hoping for a little snow for the kids to play in otherwise we will stay inside and drink hot chocolate while watching movies and playing games.
Hopefully my next post will be full of pics of our fun day.
Tuesday, December 24, 2013
Tuesday, December 3, 2013
A brave boy
We thought we had Brocs reflux under control, it seems not yet. This past week he has been refluxing a lot and clearing his throat all the time.
He is also running fevers on and off too with stomach pain. It seems like de ja vue all over again.
I will be calling Dr Zaidi tom to ask what else we can do for him. We are re testing his stool again to see if maybe the campylobacter is back or another bug.
His right ear has been bothering him for sometime now. I have spoken about the wax buildup in his right ear in previous posts. Dr Turk kept saying that he would only take it out under anesthesia as it would be too traumatic and painful for him.
Well today I spoke to Dr Moustafa's nurse about he ear situation and the fact that his balance has been off for quite a while now. She said she will speak to Dr Moustafa and get back with me. We were already there as Broc had OT and PT there today. She came out and said the the wants to try and take it out. Broc was so stressed by the time he knew what was happening. I had to lay on him and Amber held his head. It was not a pretty sight at all. Everyone in the whole clinic could hear him screaming. It breaks my heart to see him in pain and crying out when I know we are doing something to help him. Dr Moustafa finally got it all out. His poor ear is so swollen and inflamed inside due to the wax buildup. I am really happy that we got it out without anesthesia as that in itself is dangerous for him. We are hoping the buildup has not caused any damaged to his ear canal besides the inflammation.
Broc is still not eating a whole lot. He has days where he eats a good amount and then other days where all he eats is one meal. We will wait to see what the cultures say and what else Dr Zaidi has to offer him for us reflux.
Here are some pics from the Assembly this past weekend.
He is also running fevers on and off too with stomach pain. It seems like de ja vue all over again.
I will be calling Dr Zaidi tom to ask what else we can do for him. We are re testing his stool again to see if maybe the campylobacter is back or another bug.
His right ear has been bothering him for sometime now. I have spoken about the wax buildup in his right ear in previous posts. Dr Turk kept saying that he would only take it out under anesthesia as it would be too traumatic and painful for him.
Well today I spoke to Dr Moustafa's nurse about he ear situation and the fact that his balance has been off for quite a while now. She said she will speak to Dr Moustafa and get back with me. We were already there as Broc had OT and PT there today. She came out and said the the wants to try and take it out. Broc was so stressed by the time he knew what was happening. I had to lay on him and Amber held his head. It was not a pretty sight at all. Everyone in the whole clinic could hear him screaming. It breaks my heart to see him in pain and crying out when I know we are doing something to help him. Dr Moustafa finally got it all out. His poor ear is so swollen and inflamed inside due to the wax buildup. I am really happy that we got it out without anesthesia as that in itself is dangerous for him. We are hoping the buildup has not caused any damaged to his ear canal besides the inflammation.
Broc is still not eating a whole lot. He has days where he eats a good amount and then other days where all he eats is one meal. We will wait to see what the cultures say and what else Dr Zaidi has to offer him for us reflux.
Here are some pics from the Assembly this past weekend.
Subscribe to:
Posts (Atom)