Saturday, May 23, 2015

Waiting patiently.....

Broc saw his GI on Tuesday. He was very sad to hear that his gut had shut down again. He ordered some more testing which was done yesterday and another one will be done next Friday at Riley. We are hoping that these test will give us a few clues as to what we are dealing with. If the tests are all negative we have plan A. If they come back positive we have plan B. Our GI is trying desperately to give Broc the best quality of life as possible.

His lab work was looking really good on Monday when we had labs done at the Riley ER so we were all breathing a sigh of relief that hopefully things were looking up but unfortunately Broc had scheduled labs drawn on Tuesday and the rug was totally pulled from under our feet. Brocs ANC is not good again so we are staying homebound. If you wish to visit please make sure that you are not ill or been around someone that you know is ill.

Another referral has been sent to Riley for us to see another hematologist there.We are praying that it will not be a similar experience as last time. We are looking for a Dr to think outside the box as we know Broc writes his own medical journals.Also not to look at Broc as he sees him in front of him but look at his history and consider everything that has been going on. Anyone that knows Broc well he always looks good.Very rarely does he look "sick". His sensory has been extremely bad this week. He has been doing a few more things that he has not done before. Some of them are a little concerning so he has to be watched 24/7.


Little Mark had a wax museum on Tuesday. He had worked so hard on his Babe Ruth project. We really wanted to go as a family to support him.We were very happy with the good lab report Broc got on Monday so we thought it was safe to take him out in public. Unfortunately we did not have the results back yet.Thankfully we had him wear a mask.





















By the end of the evening Lil Mark was done. They had done the wax museum for the whole school during the day and then all the parents and grandparents in the evening.

Thank you for all your love,prayers and support.


1 comment:

  1. Hi Kerrigan hope that GI tests provide some positive info you need to proceed with Brocs care. Also hope you find an understanding hematologist. I love the wax museum pics glad you all good a chance to attend. They were super cute and good. Sorry to hear about his anc levels though. You have a lot going on, you are in my thoughts and prayers.

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